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A MyMyelomaTeam Member asked a question 💭
Dacula, GA
May 3
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Answer Summary

Members shared personal experiences about how stopping Revlimid affected their labs, with many reporting improved blood counts, stronger... Read more

Members shared personal experiences about how stopping Revlimid affected their labs, with many reporting improved blood counts, stronger energy, and better overall results after discontinuing the medication at the right stage of treatment. Several members noted that timing matters greatly, as stopping too early could allow myeloma markers like M protein or light chains to rise again, while others described staying on low doses with continued good results. A recurring theme was the importance of working closely with a medical team, since each person's situation is different, especially for those with high-risk disease who may need to stay on treatment longer.

A MyMyelomaTeam Member

Well, in my case, I was first put on Revlimid, and my numbers were stable except my White Blood cell count was low. (always has been) Then I was put on Pomalyst, and I had really bad reactions, so I went on Revlimid again. Had a Stem Cell Transplant and am on no Cancer meds. My monoclonal protein has been zero for 8 months. It has been a long road, 5 years, but I am doing well. I think a very good diet and daily exercise help. Good Luck everybody

May 3
A MyMyelomaTeam Member

I’m still on a low dose of Revlimid. About 4 months ago I went from 5mg for 28 days to 21 days on and 7 off. Numbers are still good.

May 3
A MyMyelomaTeam Member

Yes, Stopping Revlimid does affect your labs, but it depends on where we are in treatment. Stopping at the right time would certainly help your labs. But if we stop too soon and our myeloma gets out of control, our labs would probably go downhill.

May 4
A MyMyelomaTeam Member

At my oncologist’s suggestion I went off Revlimid over a year ago. Never had a transplant. My lab tests have steadily improved-all normal a few weeks ago.

May 4
A MyMyelomaTeam Member

I like and trust your oncologist. Please tell him/her so. google; propublica: the price of remission. See what we pay for a pill that costs 25 cents to make.

Off chemo since 2010, 84, shooting for 100.

May 4

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