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February 19
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A MyMyelomaTeam Member

I was there once. In 2008, I was rejected for Stem Cell, and being a retired cop and EMT, I came straight out and asked her, How long do I have. Maybe 6 months. Well, I did lose 6" in height and both knees, but I'm still here. I've been off any, and all Chemo since 2010.

I know, it's incurable. I'm CURED and what's more. I'm 84 and shooting for 100. The odds aren't good, but what the hell.

February 20
A MyMyelomaTeam Member

I have done the ASCT and l no nothing about this but I keep asking searching and whatever I could ( Al websites Google) just to get the answers

Hi Grant,

First, I just want to say — the fact that you’re trying to learn as much as you can already tells me your mom has a strong advocate beside her. That matters more than you realize.

An autologous stem cell transplant (ASCT) can sound terrifying at first. But for many myeloma patients, it’s a planned, controlled process — not an emergency procedure.

Stem Cell Collection (Mobilization)
She’ll get injections (often filgrastim) to push stem cells from the bone marrow into the bloodstream. Bone aches are common — it can feel like deep flu-like body pain. Temporary, but uncomfortable.

High-Dose Chemotherapy
Usually melphalan. This wipes out remaining myeloma cells — but also temporarily wipes out the immune system.

Stem Cell “Rescue”
Her previously collected stem cells are infused back in. This part is surprisingly anticlimactic — it feels like a blood transfusion.

Waiting Period
This is the toughest stretch — about 7–14 days where blood counts drop very low. Fatigue, nausea, mouth sores, infection risk. Then slowly… counts recover.

Most centers follow guidance similar to recommendations from organizations like the American Society for Transplantation and Cellular Therapy, which standardize safety protocols and recovery monitoring.

let me share something to you

The transplant is intense — but it’s temporary.
The fatigue is deep — but it passes.
The scary numbers — they improve.

What patients need most during ASCT:
Calm reassurance Help tracking medications and hydration
Encouragement to walk a little each daySomeone to remind them this phase is time-limited

You don’t need to know everything. You just need to stay steady.

*When l doing the transplant No body with me And l alone yes l understand that my wife working daughter are busy with her own family and how do l feel Even the Doctor asked where is your family members *🙏

February 20
A MyMyelomaTeam Member

Hi — my mom is going to be going through an autologous stem cell transplant (ASCT) in a few weeks, and I’ve been trying to learn as much as I can so I can support her the best way possible. If you’re comfortable sharing, what helped you most during the process? Or is there anything you wish someone had done for you while you were going through it?

She also just lost her hair today, which has been an emotional moment for her. If you went through that, what helped you feel more confident or supported?

Thank you so much — I really appreciate any advice.

February 19

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