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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is it fixed that any one in remission must face relapsed at any time? What are the steps necessary to be on remission as long as possible?

A MyMyelomaTeam Member asked a question 💭
Bhavnagar, Gujarat, India

I am in remission since July 2025. Is it fixed that in future I have to face relapse? How can I be in remission for rest of my life? I mean perpetual remission.

February 3
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Answer Summary

Members offered heartfelt perspectives on the question of whether relapse is inevitable in multiple myeloma, with several sharing that they... Read more

Members offered heartfelt perspectives on the question of whether relapse is inevitable in multiple myeloma, with several sharing that they have been in remission for years or even decades, including one member who was told by their oncologist they are cured after nearly twenty years. Many emphasized the importance of staying vigilant through regular bloodwork, adhering to maintenance treatments, eating well, exercising daily, and maintaining hope, while acknowledging that remission timelines vary widely from months to many years. A recurring theme was the power of gratitude, persistence, and refusing to give up, even when facing high-risk genetics or difficult prognoses, with members encouraging each other to focus on quality of life and the possibility of long-term remission.

A MyMyelomaTeam Member

Nearly twenty years in remission for me. This s past summer, my Oncologist told me I'm CURED, yup, my Oncologist said it. Still do bloodwork, though. Hope springs eternal. As I've told others, I met him one time seven years ago. Video phones a pretty neat.

February 7
A MyMyelomaTeam Member

I've been in remission since 2010, I consider myself cured, but still do annual bloodwork.

February 6
A MyMyelomaTeam Member

Hi Vikram, I have been on the same treatments since my transplant, December 20th, 2017. Darzalex faspro and Pomalyst 2 mg. Both my doctors encourage me to continue maintenance. My labs are good except for low immunoglobins. I get IVIG monthly. I do gave high risk genetics with 17p deletion. I have never been mrd negative. My specialist tells me he takes people off maintenance all the time, because they are mrd negative and doing well. So, I don't think everyone is destined to relapse. But we have to stay vigilant. Take our drugs as recommended, exercise every day, drink water, eat non processed food, enjoy our friends and families.

February 4
A MyMyelomaTeam Member

I've been in remission for 9 yrs. 2 mnths.,hang in there.

February 8
A MyMyelomaTeam Member

There is no cure for MM

February 8

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