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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If you are in remission, are you still considered immune compromised?

A MyMyelomaTeam Member asked a question 💭
Nashua, NH
January 10
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A MyMyelomaTeam Member

I am. Have been getting IVIG for 10 years now. Dr explained it like this, your antibody numbers look good on lab work they just are not working. 🤷🏻‍♀️

February 5
A MyMyelomaTeam Member

Yes because of the maintenance

January 10
A MyMyelomaTeam Member

It depends. Look at your white blood count and immunoglobin levels. The doctors can give us supplemental IVIG to increase our Immunoglobin G levels, especially if we keep getting infections. Many people with myeloma have a lowered immunity from our treatments and the myeloma itself. It's always good to take precautions. Like wearing masks in crowds, getting our immunizations, eating right and exercising.🥰

January 10
MyMyelomaTeam

Are myeloma patients in remission still immunocompromised?

Yes, people with myeloma in remission can still be immunocompromised. The level of immune suppression depends on several factors.

Even in complete remission, your immune system may remain weakened due to:

- Ongoing maintenance therapy (low-dose treatment to Show Full Answer

Are myeloma patients in remission still immunocompromised?

Yes, people with myeloma in remission can still be immunocompromised. The level of immune suppression depends on several factors.

Even in complete remission, your immune system may remain weakened due to:

- Ongoing maintenance therapy (low-dose treatment to prevent relapse)
- Previous treatments that affected your immune system
- The disease itself, which can impact immune function even when controlled

People taking high-dose steroids or other immunosuppressive drugs are considered immunocompromised. Those who received a stem cell transplant within the past two years also fall into this category.

It's important to discuss your specific situation with your oncologist. They can assess your current immune status based on your treatment history, current medications, and overall health. This will help determine what precautions you should take, including vaccination recommendations and infection prevention strategies.

January 10
A MyMyelomaTeam Member

Not sure when to call my situation "in remission". My lt chain numbers are all within "normal" range. But because I have no symptoms of MM and no adverse reactions to my current drug protocol I am keeping my 28 day cycle of Darzalex Faspro and 21 on and 7 off of Pomalyst. My Img, Ima and Imm immunoglobulin numbers are all low and have been since the start of this journey. I take reasonable precautions and live my life as normal as possible. My doctors tell me this may be the way it is, I can deal with this. Ultimately I am in God's hands, a good place to be.

January 10

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