This is what AI tells me; Urgently advise consulting a neurologist or hematologist before changing diet, supplements, or meds for a stable skull lesion under MRI watch. No specific interventions proven to slow progression; focus on healthy habits to minimize risks.
Key Supplements to Avoid
• Calcium supplements (linked to larger brain lesions).[cambridge]
• High-dose antioxidants (vit C/E, NAC) or growth boosters (whey/BCAA), which may mask tumor stress.[library]
Diet Tips
High-fiber plant-based foods (fruits, veggies, legumes, grains) may delay MGUS-related progression.[insideprecisionmedicine +1]
Lifestyle
Keep walking/cycling, control weight, avoid processed sugars/fats; review current supps (curcumin/IP6/mushrooms) with doctor pre-Feb MRI.[reachmd]

I was told to take calcium supplements as well. I try to get calcium from food as much as possible. Since the supplements don't agree with me. We do need to check with our doctor.

Hi KathrynGuillaum.
If you have a lesion (called lytic lesions) this is not a plasmacytoma, thankfully! A lesion is an area of weakened bone due to MM, whereas a plasmacytoma is an actual tumour in the bone. I have had both and the plasmacytoma in my collarbone was excruciatingly painful, whereas I have never had pain associated with my skull lesions. I have 2, which were first noticed during my MM diagnosis in 2019. They have never grown in all that time. There are no restrictions to activity that I've been cautioned about, and I STRONGLY disagree with the advice to avoid calcium supplements. Please consult your doctor - there are only a couple of reasons not to take it, one being high blood calcium levels. Caltrate Plus was recommended by my hematologist for bone strength, not only for MM, but to help in avoiding osteoporosis (amongst other things, of course, i.e.weight bearing exercise and diet etc.). Women are especially at risk of osteoporosis and osteopenia, and coupled with multiple myeloma, places us at increased risk of deteriorating bone strength and fracture. So far I have only a low level of osteopenia that has not increased since pre-MM. I will be 67 this year and have had no hormones or hormone replacement therapy since having both a hysterectomy and ovary removal at 34 years of age. Caltrate Plus has calcium, vitamin D, and other ingredients to help metabolize both. Take care and we a stand with you, hoping for positive updates!

I am going to get quarterly MRIs....next one is in Feb. Thank you Mohd!!🙂🤞

@A MyMyelomaTeam Member “You’re not alone”as l know this is localised condition and many people do well tor years especially with proper follow up treatment
Go and check out with your specialist Heamotology doctor to get your blood test,M protein and F L C with the Periodic imaging (Pet MRI and CT if advised)
Even if you feel well, follow - up’s keep changes early
That only can l say 🙏

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