Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Hollis AK

When patients worry about losing hair and have some serious side effects, why is Lenolomide(sp?)/Revlimid blamed? I did lose hair in many places but not from my head

December 28, 2025
 · 
Reactions

Answer Summary

Members discussed whether Revlimid (lenalidomide) causes hair loss, with most agreeing that it does not, noting that harsh intravenous... Read more

Members discussed whether Revlimid (lenalidomide) causes hair loss, with most agreeing that it does not, noting that harsh intravenous chemotherapy like melphalan is what typically causes significant hair loss by killing rapidly dividing healthy cells. Several members shared their personal experiences, with many reporting years on Revlimid without losing head hair, though fatigue, cramping, and balance issues were commonly mentioned side effects. A recurring theme was gratitude for targeted MM treatments compared to traditional chemo, along with encouragement to stay informed and advocate for oneself when managing side effects.

A MyMyelomaTeam Member

I think the biggest difference is that traditional, harsh, intravenous, chemical chemotherapy indiscriminately kills rapidly dividing cells- both cancer cells and normal, healthy dividing cells. This is why people lose their hair. Whereas MM meds in pill or subcutaneous injections form are designed to target specific abnormal plasma cells. So MM drugs are considered targeted or immune therapies, which the biggest distinction from classic chemotherapy.

December 29, 2025
A MyMyelomaTeam Member

Kathryn,
If needed, there is an alternative to Revlimid. Pomalyst. Try not to worry. You are doing great!
Paula🌹

December 29, 2025
A MyMyelomaTeam Member

I have been on 25 mg Revlimid for almost a year ( along with the other BiG Three). Still have a head full of long hair! It did thin out a bit but have been using various hair care products to strengthen my hair and invigorate the follicles.
the “ lost hair” is now filling back in and I feel it’s no harm/ no foul . So grateful to have the needed medications to stay alive and even prosper -
I know that if a ASCT is ever needed I’ll lose the hair—- but I also know it grows back. ( Cause I went through that 30 years ago with a different cancer .Everything is relative with this ridiculous myeloma disease. I’m not even going to capitalize mm anymore. It doesn’t get that much power from me.
Yeah I know this may have sounded a little kookie, but all true and I shared my heart. ❤️
Peach, Love and Joy to all and especially those who are suffering with various side effects, including hair loss and pain. . 💕💕💕

December 28, 2025
A MyMyelomaTeam Member

The day before my SCT/BMT I was given a dose of melphalan. About a week later, I looked like a plucked chicken. Include also, extreme nausea,vomiting and diarrhea. I would pass on a second SCT if I relapsed and look for another option because of the melphalan.

December 29, 2025
A MyMyelomaTeam Member

Linda, I appreciated your candor in discussing MM! Don’t give it more power than need be.

December 29, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Hollis AK

A MyMyelomaTeam Member asked a question 💭
Pretoria, ZA