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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question đź’­
Hollis AK

If there is such a drug available, what would be the cost comparison for the patient who is on Revlimid or related drug ?

March 12, 2025 (edited)
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A MyMyelomaTeam Member

@KathrynG
I was given Revlimid at induction (first line of treatment).

I'm on TALVEY now, and it does target two specific myeloma cells.
Now, I understand this is not a cure. There is no cure for myeloma. But there are treatments that can put us in remission. I had CARVYKTI CAR T cell procedure that put me at 18 months remission. And when it came back aggressively, we tried ABECMA CAR T but it failed. Then tried another chemo. It failed. Meanwhile myeloma growing. In comes TALVEY and it's working. 👍 But for how long? One day at a time.
There are side effects with TALVEY I never had before and it can be discouraging if I let it.
I cannot let it.
Been fighting back since 2016.

March 12, 2025
A MyMyelomaTeam Member

@MiriamMarino-I’ve been on Talvey since 1-2-24 and am MRD negative. I still require a good nights sleep but otherwise feel great. You are correct to take one day at a time and I try to stay positive and optimistic.

March 12, 2025 (edited)
A MyMyelomaTeam Member

So far, every drug I've been given, even if it is 'targeted' to MM has effects on other 'cells'. They generally call them 'side effects' but it is actually destruction of healthy cells as well as the targeted MM cells. I am now on Talvey, a bispecific, having relapsed after both stem cell transplant and Carvykti. My finger nails and my toe nails have peeled off. At first I lost all the top layer of my skin on both my hands and my feet. I have no sense of taste or smell and my mouth is constantly dry. These are considered 'side effects' of the drug however it is the destruction of those cells. So 'targeted' Talvey might be but not without the destruction of other, healthy cells. I am not in remission but my M-Spike is consistently 0.2 and my PET Scan on Monday showed pretty good response with decrease of bone lesions (one of which cracked my upper right humerus) but there is still uptake in some areas. So I continue the Talvey every 2 weeks and pray it continues to work. I'd rather live with the bad nails, loss of taste and smell, than the alternative.

March 13, 2025
A MyMyelomaTeam Member

There are many, many targeted therapy drugs/treatments and this is the direction of all new treatment research. The latest are Car-T and BiSpecific Antibodies.

If you google "multiple myeloma targeted treatment", The AI Overview will list a large number of these. These are targeting protein markers on the myeloma cells like CD38, SLAMF7, BCMA (Car-T and BA).

An interesting note about BiSpecific Antibodies. Bi means 2 so it attaches to 2 cells. It attaches to the myeloma cell using that BCMA marker, then it attached to your T-Cell (which are called natural killer cells). The brings the T-Cell in contact with the myeloma cell and kills it. Really amazing stuff.

March 12, 2025
A MyMyelomaTeam Member

Turmeric is different than C3 Curcumin 95% Extract. I've never taken Turmeric and have no plans to do so. Only 3% of Turmeric is Curcumin.

April 11, 2025

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