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I already have damage to the nerves in my feet and hands, damage to my heart and I had a case of vertigo last Friday that sent me to the emergency room

November 6, 2025
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A MyMyelomaTeam Member

Hi Brian,
I am Smoldering too. They say there are no symptoms, but there are. I started getting neuropathy in 2014. My WBC was below normal in 2011. My body hurts. I have fatigue and past high calcium levels. I have a heart condition and see a Cardiologist, I hope you do too. My first Oncologist did not have answers. I learned on this site that only MM Specialists understand Multiple Myeloma the best. Make sure your Hematologist/Oncologist is a MM Specialist. The Multiple Myeloma Research Foundation has a lot of information and a list of MM Specialists. Https://www.themmrf.org/
Paula🌹

The MMRF | Multiple Myeloma Research Foundation
The MMRF | Multiple Myeloma Research Foundation
November 6, 2025 (edited)
A MyMyelomaTeam Member

Brian, Have you been tested for amyloidosis? I had a fat pad biopsy on my stomach that was thankfully negative.
Paula🌹

February 21
A MyMyelomaTeam Member

Neuropathy is common. I have had SMM for about four years and neuropathy and fatigue have been the major issues I faced. I combat that with daily exercises, particularly walking for 2 miles at least 3-4 times a week. Don’t let it get to you—win against it!!!

February 21
MyMyelomaTeam

Is it common to have symptoms with smoldering multiple myeloma (SMM)?

Smoldering multiple myeloma typically doesn't cause symptoms - it's defined as an asymptomatic condition. People with SMM have disease signs like too many plasma cells or high M protein levels that show up on tests, but they generally don't feel Show Full Answer

Is it common to have symptoms with smoldering multiple myeloma (SMM)?

Smoldering multiple myeloma typically doesn't cause symptoms - it's defined as an asymptomatic condition. People with SMM have disease signs like too many plasma cells or high M protein levels that show up on tests, but they generally don't feel symptoms.

If you're experiencing nerve damage in your hands and feet, heart damage, and vertigo, it's really important to discuss these with your doctor right away. These symptoms might indicate that your condition has progressed beyond SMM to active multiple myeloma, or they could be related to other health issues that need attention. Active multiple myeloma can cause symptoms like:

* Nerve pain or neuropathy (damage to nerves)
* Bone pain
* Fatigue
* Frequent infections
* Kidney problems
* High calcium levels

Your healthcare team may need to run additional tests to determine whether your SMM has become active myeloma or if something else is causing your symptoms. Don't wait - reach out to your oncologist about what you're experiencing, especially after your ER visit.

November 6, 2025

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