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These are good questions to ask your oncologist.
The information comes from your bone marrow biopsy which from there they do a FISH report and Cytogenetic report. I have t(14:16) with 16q deletion, +5, and Monosomy 13. The other information you need is, what are your Clusters of Differentiation (CD’s) I have many CD20, CD138 etc. Most people have CD38 which is why most of drugs target it.
Paula🌹
I was originally t4;14 Stage 2 at Oct 2021 - MRD Negative June 2022 & stopped all MM Meds. My last BMB in Aug 2023 had no Abnormalities and no longer had t4;14.
Understanding your genetic profile and risk factors is crucial for making informed decisions about your myeloma treatment. When meeting with your oncologist, consider asking these key questions:
• What specific gene mutations have been identified in my myeloma
• What risk category do these mutations put me in?
• How do Show Full Answer
Angie, do you have access to you patient portal? Like Paula says, it should be on your portal. Unless you were diagnosed at another facility. I had to get copies of my medical records from the first facility I went to, since they didn't have a patient portal yet. Now Emory has everything on their portal. I often read my labs and Xrays before my doctor sees them.
I wished our oncologists in Lake Charles would provide more information but only if you ask for it do you receive it and sometimes we don’t know what we need to ask for.
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