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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Newburgh, IN
August 17, 2025
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A MyMyelomaTeam Member

I’ve been getting neck pain. Never had any issues prior to the myeloma . It usually starts if I’ve been on my feet to long. Goes from my neck into my head, a burning ache.
What do yours feel like and how does it start or causes a flair up?

August 18, 2025
A MyMyelomaTeam Member

Hi Betty - I am sorry to hear this. I don't have neck pain, but my scalp does give me issues. Guess I would describe it as light pain, itching and tingling. My hair thinned some as well. I started a hair, skin and nails supplement which has helped.
Have you asked your Cancer Care Team for assistance? Also, have you had any Pet Scans or X-Rays that highlight any possible lesions? I relapsed earlier this year and have had several Pet Scans. It appears I do have a lesion on my skull, but I don't really have any headache issues, so I decided not to worry about it. Hoping my new chemo regimen slows the progression of bone lesions.
One other thought. My right clavicle has a lesion and fracture. Sometimes it hurts and feels achy. I have found a hot compress helps.
Sincerely hoping they can help you with your pain issues. Please keep us posted on your progress. Take care, and God bless. ♥️

August 18, 2025
MyMyelomaTeam

Yes, pain in the skull and neck area can definitely be related to myeloma. This happens because myeloma causes abnormal plasma cells to build up in the bones, forming tumors and causing damage. These myeloma lesions (tumors) can weaken bones and cause pain in various areas including the skull. The pain occurs because Show Full Answer

Yes, pain in the skull and neck area can definitely be related to myeloma. This happens because myeloma causes abnormal plasma cells to build up in the bones, forming tumors and causing damage. These myeloma lesions (tumors) can weaken bones and cause pain in various areas including the skull. The pain occurs because myeloma cells:
• Overcrowd the bone marrow
• Produce proteins that disrupt normal bone formation
• Destroy bone faster than it can rebuild
• Can form tumors that put pressure on nerves

If you experience sudden or severe pain, especially with any neurological symptoms like numbness or tingling, it's important to contact your healthcare provider right away as this could indicate a serious complication requiring immediate attention.

August 17, 2025

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