Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Hollis AK

Could MM or treatment cause dementia?

August 17, 2025
 · 
Reactions
A MyMyelomaTeam Member

At least for me, the infusions, chemo for the stem cell harvest and then the two heavy dose of malephalm had my brain foggy for months after treatment was complete. To this day I still have cognitive issues but not as bad as when I was going thru treatment.
I do allot of brain exercises to help sharpen my mind... crossword puzzles and the like help a ton... definitely getting better by the day...

August 17, 2025
A MyMyelomaTeam Member

I do word games, and journaling and reading. I don't know frankly, if I'm better then when I was on treatment..or just different; I am just different now, in general, and frankly, I don't like the changes.Still hard headed and won't quit on myself.
We all change in some way, I think .......Thank you, BOb!😊

August 17, 2025 (edited)
MyMyelomaTeam

While multiple myeloma doesn't typically cause dementia specifically, people with myeloma can experience cognitive changes that affect thinking, memory, and problem-solving abilities. These changes may become more noticeable the longer someone lives with myeloma.

Common cognitive challenges can include difficulties with
• Show Full Answer

While multiple myeloma doesn't typically cause dementia specifically, people with myeloma can experience cognitive changes that affect thinking, memory, and problem-solving abilities. These changes may become more noticeable the longer someone lives with myeloma.

Common cognitive challenges can include difficulties with:
• Paying attention
• Planning tasks
• Multitasking
• Short-term memory
• Following instructions Researchers aren't entirely certain whether these cognitive changes are caused by:
• The myeloma itself
• Side effects from treatments
• Natural aging processes

If you notice changes in your cognitive function, it's important to discuss this with your healthcare team right away. They can help determine the cause and suggest strategies to help manage these effects.

August 17, 2025
A MyMyelomaTeam Member

Thanks Deb, I appreciate your well wishes.
Once I ended chemo, my brain fog got better.
I've been learning Italian, and will do 5 or 6 lessons a day. So far I've been doing well, not forgetting words, phrases etc. Recently mathematic and music lessons have been added, for a bit of a change. I only do the math because I have zero musical talent. Can't believe I remember so much from school, basic math, fractions, algebra. I hope these language and math lessons would act like an early warning for me, if I started forgetting the basics. Also I really enjoy them. Maybe one day I'll get to Italy, then I can wow them all with my fabulous mathematical skills. 😎
I wish none of us had to worry about dementia, or brain fog. I pray for each of us, as we face whatever comes our way.

Hope you all have a great day!

August 27, 2025
A MyMyelomaTeam Member

I started Chemotherapy again for a year the Dr. says. My brain this time is so foggy and I’m very dizzy during the day. What a difference from the first time. I am taking a new drug from the University of Oregon, Knight Cancer Institute. I finally changed Doctors as well. Fred Huttch in Seattle missed it. Knight Institute Cancer Center said I should have been in treatment before now. Well here I am in treatment for a year now. I believe that God has a hand in my healing though. I am taking DaraVrd, Velcade, Revlimed, Dexamefine, Aspirin, 325mg, Tylenol 625mg, SMZ/TMP DS 800, Prochlorperazinr 10mg.,Acyclovir 800mg,Allergy Relief 25mg, and a 3 month bone medicine, all for a year. Who wouldn’t have a foggy brain? Well anyway, my future is in God’s hands for now. No Stem Cell treatments yet though. Stay well everyone and be positive. I haven’t written for awhile due to being so very tired. I am gaining weight as well with all this medication. Has anyone else gained any weight? God Bless everyone. Thank you, Sharon

August 17, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

A MyMyelomaTeam Member asked a question 💭
Ewa Beach, HI