I’m on Revlimid every other day and tolerate it much better than 23 days on 7 days off.

Many people get severe and permanent neuropathy from Velcade. It's a very old Med that's long before newer options. I'll never take it again and I wish I knew not to have taken it in 2021. Be very careful and cautious with it

I have a lot of leg pain from Velcade, worse at night, naturally. I go from extra strength Tylenol to Tramadol which bring relief to at least a comfort degree.

I've been very lucky so far as far as side effects. I'm starting cycle 4 of my induction. I'm doing DRVD which includes both Velcade and Revlimid, it's going well. My only issue is the Revlimid causes my white counts to crash. I started at 25mg, dropped to 15mg and still had issues. I'm taking an additional week off the Rev and if my counts go back up I'll restart with 10mg on Friday. I did have a little itching on my first cycle of 25mg, weirdly enough it was just on my head and scalp and nowhere else, still very annoying! Good luck! Hope the Velcade works without too many painful aches 😊

I’m on No MM Meds for 20 months after a two month treatment of my Bone Lesion in Sept 2023. Prior to that I was off all MM Meds for 15 months after my original Induction/Maintenance treatment from Nov 2021. Never Collected my Stem Cells and No SCT / I’ll never consider either of these.

In 2021. I was Stage 2 with t4;14 high risk. Induction was DarzFasPro + RVd for 3 months and then 4 months reduced Maintenance. My review of my Labs from 2021, documents that I was actually back the Negative after just 5 weeks. They missed this and I didn’t know then what I’ve since learned - had I known I would have immediately stopped Velcade and greatly reduced my Meds and shortened my Treatments to about 3 months max.

I remain in Complete Remission with only Monthly Monitoring of my Labs and Quarterly Blood Sample clonoSEQ MRD Testing - No Annual BMB and No Annual Imaging. At 71, I’m on no typical older age prescriptions - my Blood Pressure, Cholesterol, Kidneys and Liver are all excellent - basically great Labs in All Categories with no Meds what so ever.

I do continue with 5 mg Ritalin 3x daily and 500mg 3x daily. Otherwise, nothing else

Primarily a Plant Based Diet. Organic Food whenever possible. Recently I started eating organic pastured raised eggs and chicken. EU organic salmon once a month. No red meat or pork. Now just a little dairy (mainly Greek Yogurt) from A2 organic sources. Plenty of veggies and fruits and Supplements. I always keep my Vit D at 85ng to 100ng range and plenty of exercise and out door activities ( mostly golfing and plenty of golf range practice)