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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 18, 2025
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A MyMyelomaTeam Member

Hi. I was noticing my hair thinning but it was not due to the SMM but rather Vitamin D deficiency which is prevalent with MM. I would suggest you get your vit D levels checked. With my Vitamin D levels up again my hair is thicker again.

July 21, 2025
A MyMyelomaTeam Member

Hi Paula.
Once again you break my heart because you remind me of my daughter. 💕
Recently I've noticed that when I do excessive work in the summer heat, that hair clogs the drain when I shower that evening.
I don't think you're there(around 64)but stress is probably getting the best of you.
I hope you can find a peaceful medium.
Let life run it's course and relax in the fact that you've done all you can and that you've loved harder than anyone could.
I feel your pain Hun and pray for your peace. 💕

Charlie

August 12, 2025
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
You have great advice. I have been stressed. My Dad has become a handful at the Memory Care Home. They are so patient and kind to him, but he has gotten aggressive a few times, so now they are talking about Medication for that. We hired a private caregiver to come after 4 PM when he “Sundowns.” I bring him to my home to sit on the porch and read, but lately he has refused or walked off! I had to chase him. It definitely can be stress. I’m also thinking it may have to do with my hormones which were affected by Cushing’s. I don’t produce any DHEA and my other hormones are low. I’m not sure if I can have hormone therapy with SMM, but I will consult the doctor. It’s funny, but one of the first questions I asked, was whether all treatments caused hair loss. I’m really paranoid about that, and now it happening anyway. With only a couple of hairs on my eyebrows, I do look like I have had chemo. I can fix that with makeup, but not the hair loss on my head.
Paula🌹

July 20, 2025
A MyMyelomaTeam Member

Paula, I agree with Teddy. You have been under a lot of stress. I do take biotin. I think it does help my hair and nails grow. I make sure I get plenty of protein as well.

July 20, 2025
A MyMyelomaTeam Member

I hate it when men have prettier legs than I do. 🤣

August 20, 2025

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