The fatigue is a challenge for me too. I work and have a kid with special needs and I’m so tired I’m losing my words. I’m no where near sick enough to qualify for disability which is a blessing but I no longer enjoy work which is the majority of my day everyday. Right now I’m a healthy weight but I’m having to replace clothes and I don’t want to get much if I’m just going to have to do it again in another month. I settled for 3 pair of pants and I’ll wait and see how it goes. They lowered the prednisone from 20 to 8 so maybe that will help. Thank you for the reply and good luck with the CarT

When I first realized I had MM, I lost 70 lbs. I was heavy anyway, so I welcomed the loss. Hated how I lost the weight (vomiting, diarrhea, loss of appetite). I have gained all that weight back. When I ask doctor and nurse practitioner, they both say it's the steroids.
I start car t cell therapy next week, so I hope the weight will come off again. We will see.

I hate the fatigue. I rest when I have to. I have fallen asleep in movie theaters which I think irritates the people I go with.
I find it very difficult just to take my shower. I get exhausted trying to dry myself.
I put my underwear on, and then I have to rest. After a while, I dry and style my hair and I lay down again.

I used to b an active person, so it is hard dealing with it. I rest when I have to, and now I am not ashamed to rest. It's my new life, but, hey, I am here!!!

Yes, the weight gain is mainly water gain from the use of the strong steroid dexamethasone. A lot of MM patients take this steroid long-term and initially at higher doses as it’s effective in killing MM cells. But as you come out of induction therapy, you can scale down its use. Which means the weight should come off, as it did for me.