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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 1, 2025
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A MyMyelomaTeam Member

I have been in a clinical trial since 1-2-24 and has been successful for me. I am MRD negative meaning no cancer cells were found after last testing. Initially I had some reactions but they have subsided except I haven’t gotten all my taste buds back yet. I get 3 injections in my tummy monthly. Pretty easy peasy.

June 1, 2025
A MyMyelomaTeam Member

@A MyMyelomaTeam Member - you didn’t read my message correctly. I’m MRD Negative which means no cancer cells were found during last testing. That is better than being in remission.

June 8, 2025
A MyMyelomaTeam Member

@Ripnlips-yes 2 injections of Talvey and 1 injection of Daratumumab. There are 810 of in the world on this clinical trial with 3 different types of meds. My oncologist and I are happy with the one I was given.

June 3, 2025
A MyMyelomaTeam Member

To Colleen, is it Elrexfio? That’s how i’m getting my treatment, every othr week.
To Milton, I’m very afraid of needles & if i tell you that it’s not as bad as it seems..believe me. The medicine burns at a certain point. Now i’d NOT want to be getting shots in my knees as some do for knee pain.

All the best to you both🙏

June 1, 2025
A MyMyelomaTeam Member

Thank you for answering Colleen. I am glad it’s working for you. I couldn’t help but to wince when you mentioned where.! You are very brave! All of a sudden I am not looking forward to it as much !

June 1, 2025

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