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I have not received anything and both my PET scans at beginning and at 10 months clear of lesions-normal. My concern is since my last treatment (5-31) I have been having more then usual pain, today was pretty rough. My joints in ankles/wrist crack noise, walking slower then normal. I did get a dr appt for tomorrow morning-

June 13, 2024
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A MyMyelomaTeam Member

Hi Andrea...like Paula and Sandra, I'm not getting any formal bone treatment like Zometa, but I am taking supplements. I take D3 and Curcumin and will begin taking strontium, calcium, magnesium, and K2 next week (slowly introducing various supplements). Good luck at your doctor's appointment tomorrow...sending prayers!

June 14, 2024
A MyMyelomaTeam Member

Andrea,
With what we have, supplements are very needed. I wish doctors would test for vitamin deficiencies.
Paula🌹

June 14, 2024
A MyMyelomaTeam Member

Update- dr stopping Revlimid for two weeks. Running a bunch of bloodwork-plus lime, uti and arthritis. Waiting 🤔 and I’m resting today, my body obviously is saying something. Thanks- I do take calcium +D3, multivitamin and occasionally curcumin because I’m on eliquis. My doctor continues to tells me other supplements aren’t needed but I will continue to do more research and will take suggestions always.

June 14, 2024 (edited)
A MyMyelomaTeam Member

I am taking 1200 mg of calcium with D3 I take vitamin B complex and a multi vitamin. I drink lots of water and I do drink 1 cup of coffee a day and once in a while I drink zero sugar Pepsi. I did not do the SCT and I am not getting the bone treatment. I am going to get an appt with a neurosurgeon sometime on the fall to see about back surgery for my compression fractures.

June 14, 2024
A MyMyelomaTeam Member

Andrea,
Are you taking Curcumin or any other supplements to help with inflammation? What about calcium, magnesium, D3 & K2. Are you getting enough? These are what help me. Avoid salty foods, carbonated drinks, caffeine as they take calcium out of the bones.
Paula🌹

June 13, 2024

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West Monroe, LA