Yes, I had this at diagnosis. It depends on how many of our myeloma cells are missing the short arm of 17p and if we are missing both copies of the gene. Complicated stuff🫣. It can mean our myeloma is more aggressive and harder to treat. Having a great myeloma specialist is so important.

I have a Multiple Myeloma specialist. I go see my specialist the end of this month

When I was diagnosed a year ago, 60-70 percent of my bone marrow was involved.
Plus amplifications, deletions and translocations were noted.
After stem cell transplant in Oct. 2023 I am still MRD+

I am grateful to wake up each morning. I am grateful through everything I have had very little nausea.

I won’t lie - every day is a struggle with the pain.
Some days I think I would rather die than be in pain.
My doctor suggested morphine. But I’m not ready for that.

Also have my fifth bone marrow biopsy scheduled for the end of August. After that report the results should show whether the drugs I am taking are working.

Hi Eileen, I think you are doing great. I'm still mrd positive, but the numbers have been going down. I hope your pain improves 🥰