Hello Lily, Zometa can be intolerable for a lot of people. I couldn't tolerate it and instead have an annual infusion of bisphosphonate called "Pamindronate". It is a long infusion but no side effects. Zometa caused me to have anemia, respiratory infection, and all my blood work was off. I had a friend that the same thing happened to and it took her 3 months for her blood markers to recover. That being said, I have another friend that had no issues at all after several Zometa (zolidronic acide) infusions.

Lily, do not panic! Yes, you are anxious but being so young you will tolerate treatment better than most. Will you be given Velcade, Revlimid, Darzalex and Dexamethasone along with your bone strengthening shot? If so it will probably be a weekly trip to the infusion center for 16 weeks. Then the ASCT about 6 weeks later. I’m going to be 73 and handled all of it well.

I did not crack any bones but the shoulder and upper arm were so eaten that they had to be replaced. All went well.

So within 10 months you’ll be in remission. Then 2 years of maintenance in all likelihood.

Don’t panic. Not curable but treatable. You’ll be fine!

I am IGA Kappa

FYI, My cancer is also IgG Lambada with translocations. RVD didn't work for me, though Ninlaro, replacing velcade, did work for a full year before progression.

How people can afford those costs? Are there any grants? Financial aids?