DebM, I so sorry. Do research. Maybe, someone shares your same concerns. You are in my meditations.💙
WOW! That's awful. I have learned to feel okay using Imodium most days. Thanks for sharing.
Deb - I had uncontrollable diarrhea. The Mm specialist put me on colestipol but it did little to help. I went to a gastroenterologist and she put me on a steroid, budesonide. It gave me back my life. Three years later, I still take it. I take two 3mg tablets in the morning (down from three) . I still take one colestipol at night. She also suggested Metamucil. I started taking it but fount it caused constipation, BTW, she suggested that i may have chemo induced chrohns. I have been on revlimid for 9 years and it has an accumulative effect over the years.