Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Rochester, NY

Or had SMM for some time and haven't progressed.
I'm told I have a 50% chance of progressing in the first 5 years.
And 70% over 10 years. I'm not sure what my odds are of hitting a dear with all the country driving I do. I'm signing up for a clinical trial that tries to prevent progression.

December 9, 2023
 · 
Reactions
A MyMyelomaTeam Member

Hi Mark,
I was diagnosed with MGUS in 2020. Probably had it for years. I progressed to Smoldering in March 2023. I am high risk, so I will probably progress quicker than I would like. Fortunately, my numbers are stable. I think it depends on your FISH Cytogenetics Report. Each year new therapies emerge. Your odds are good that they may find something to treat you.
Paula 🌹

December 9, 2023
A MyMyelomaTeam Member

Mark,
I read so many good things about Curcumin. Larry2 thinks it has helped him. I think he said the trials use a specific type, different from what you would normally buy at the store.The trials of it all sound very promising. Keep us posted.💕
Paula 🌹

December 10, 2023
A MyMyelomaTeam Member

I sure will! It looks like this is likely the trial I'm enrolling in:
https://classic.clinicaltrials.gov/ct2/show/NCT...
Interestingly it lists the "Drug" used:

Drug: Curcumin plus Piperine
Curcumin with piperine is a well-tolerated over-the-counter supplement.
Other Name: Curcumin C3 Complex®

which I found on Amazon:
https://www.amazon.com/Turmeric-Curcumin-Comple...

It claims to be exceptionally bio-available.

December 11, 2023
A MyMyelomaTeam Member

I think that it is great to participate in a clinical study with SMM. The theory is that treatment at this stage may actually curative. In my case, I went from MGUS to SMM to active MM in a 10 month period. It was a rapid decline.

December 26, 2023
A MyMyelomaTeam Member

Hi Marcia, thanks so much for your reply and the info on turmeric. I'm so sorry to hear that your SMM has progressed and that you've had difficult treatment. Wishing you blessings in the midst of these challenges! ❤️

December 26, 2023

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Dallas, TX

A MyMyelomaTeam Subscriber asked a question 💭