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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL
August 5, 2023
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A MyMyelomaTeam Member

i had an autological stem cell transplant in 2018 (sorry for the mistake above).

August 7, 2023
A MyMyelomaTeam Member

Hi Michael, I had my SCT at University of Nebraska. I went through all the pre testing about a week or two before which included getting a port inserted and them gathering my stem cells that took about four hours but was fairly easy for me. The night before I was admitted I received the infusion of melfan. They have you chew ice during that time to avoid mouth sores which I never got thankfully. The next day I received my cells back through the port. I felt a little like the mild flu but it passed quickly. That’s when all your counts drop. I felt pretty tired but the side effects from the chemo didn’t start till later in the week. Little rough for a few days but they want you get up and walk everyday. I was inpatient for 2 weeks some places do it as outpatient. Each facility does things differently and of course everyone’s experiences are too. I was pretty fatigued for a couple of weeks not much energy but I tried to walk every day. Took me awhile to get my appetite back my taste was definitely off. I did stay at home for about 3 months before I went back to work. It was a long haul but everyday was a little better. It’s been 6 years but I would do it again if I had to. I hope this helps and if you have any questions please let me know.

August 10, 2023
A MyMyelomaTeam Member

I know of one who is still doing ok after 26 yrs.

August 5, 2023
A MyMyelomaTeam Member

It has been improving. I think the latest I heard was 5 to 8 years. There are some people on this site over 20 and I personally know several people over 10 years.

August 5, 2023
MyMyelomaTeam

The life span of people with myeloma varies based on several factors, including the stage at diagnosis, age, overall health, and response to treatment. Here are some key points from the knowledge base:

- Stage 1: About 82% live for five years or more after diagnosis
- Stage 2: Approximately 62% live at least five years.
- Show Full Answer

The life span of people with myeloma varies based on several factors, including the stage at diagnosis, age, overall health, and response to treatment. Here are some key points from the knowledge base:

- Stage 1: About 82% live for five years or more after diagnosis.
- Stage 2: Approximately 62% live at least five years.
- Stage 3: About 40% live for five years or more.

Survival rates have improved due to new treatments, and some people can live up to or beyond 20 years.

July 30, 2024

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