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With the MM the life of those who have been living, dealing, suffering.How does it like.
Like me my life has turned to be upside down,Feeling scary the treatment is difficult fatigue dealing with others who don’t understand
What are you going through with this situation and matter now .
Just for sharing 😀🙏
@A MyMyelomaTeam Member,
I am only able to drive, walk, brush my hair, shower, rake leaves and clean house, by the grace of God. There have been times where I could not do any of these things. I need to praise God every day and every minute .🛐🕊️🙏🏻✝️ I am not on any treatment, but I am eating right (most of the time) and taking supplements, which seems to help.
Paula🌹
My daily life has drastically changed in the last 6 months. Although I’ve been dealing with MM for almost 5 years, my husband was recently diagnosed with AL Amyloidosis, he also has SMM. I’ve always managed the finances, now I manage all major household repairs, more of the housework and meals. Not to mention keeping track of all our doctor appointments and medications, it’s a lot, but I’m a person of deep faith. I’m in prayer constantly to Jehovah. He has helped me to endure. I love my husband of 52 years this month. We keep a calm and peaceful home. We try to find humor in the smallest things. And we look to assist others. It can be an encouraging word or invite someone to eat with us.
We realize this is temporary. So we just keep it moving. And this is my hope for the rest of my Myeloma family❤️
Moh,
I will never give up faith in God, but I hope to have a happy death and see Jesus. My body is not what’s important. It’s my soul that is everything. It’s my soul that loves, hopes, has faith. While I wait, may I be a servant of God.
Paula🌹
Honestly I feel like I live in the upside-down. There are issuse here just like there. Some followed me and alot of new ones. Too many to list. I am struggling. All I can say is take them one at a time. And stay strong. Easier said than done someday's.
As I read about how this MM has changed people’s lives and affected their bodies in so many ways and how it takes over and I feel sorry for them and I I have just finished up 3 years of treatment I know with Gods blessing it’s made my journey a lot easier I have 3 Great doctors and several nurses who have taken great care of me and my wife of 45 years has been by my side for every appointment has made my life better I have had 1 back surgery 4 weeks in the hospital at different times 3port surgeries and a bunch of chemo treatments and a car T cell transplant that went very well I am Down to 1 visit per month now I want to thank Jesus Christ that I am going to get to Celebrate Christmas with my family this year I would like to Wish everyone out there in MM land a very Merry Christmas and a much better New Year and pray that your body will continue to heal
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