Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Cary, NC

He is Stage 2. Lesions on spine cervical area. Diagnosis last week and already starting treatment protocol. We don’t know what to expect or his limitations on a day to day basis. So much unknown.

June 1, 2023
 · 
Reactions
A MyMyelomaTeam Member

And one more thing …
My first month included sleepless nights surfing medical websites to find legitimate info. Some people want to know everything; some people are happy with just what the doctor tells them. I have learned Doctor time is not about educating us, but about saving lives & doing research for which I am grateful.
In month 2, I found a support group in the Bay Area that is info-rich. Caregivers &/or patients are welcome to join the monthly ZOOM meetings. They also have dozens of links to good info websites. Here’s the link
http://www.sfbayareamyelomasupport.org/
I also rely on Mymyelomateam.com for the ordinary everyday things us MM peeps have to face like making side effects less awful. This is a roller coaster ride for sure. Hugs for every hour that feels like 10 when you are caring for your husband. TGIF, Dorothy aka Ruby Slippers

June 2, 2023
A MyMyelomaTeam Member

Agree with Ripnlips … RVD is standard of care. Remembering the black hole of my first month after diagnosis. Looked up your Cary, NC and you are lucky to be near Duke Blood Cancer Center. A myeloma specialist on your team is a big plus if your oncologist is not.
2400 Pratt St
Durham, NC 27705-3976
Get Directions
Appointments
(Phone number can only be seen by the question and answer creators)
Office
(Phone number can only be seen by the question and answer creators)
Clinic Hours
Monday - Friday 8:00 am - 5:00 pm
The infusion room is open 365 days a year, Monday through Friday from 8:00 am - 6:00 pm
Hugs from the Left Coast,
Dorothy

June 2, 2023
A MyMyelomaTeam Member

Thank you so much 🙏

June 2, 2023
A MyMyelomaTeam Member

It's good to have a oncologist who drives right into treatment after a solid diagnosis. Is he on RVD? That's pretty much the standard now and it worked for me. Learn as much as you can about these drugs. Especially side effects and as so as he gets them, report it to your oncologist and get a treatment plan for it. Good luck with treatment and I'll be praying for success.

June 1, 2023

Related Questions

View All
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In