Weeks after my recovery from Covid my Oncologist re-started my regimen of Krypolis, Pomalyst, and Dex. After three treatments we found it didn't work anymore. In fact my kappa light chains continued to climb. So my Oncologist told me he will be starting me on new chemo when I see him this Wednesday. I don't know what these meds will be though. So since this regimen has stopped working this will be my 3rd relapse.
I am interested in patient's experiences starting a 4th regimen of chemoโฆ read more
You have had the monoclonal antibodies?
I have read about Teclistamab and plant to talk to my doctor about it Wednesday.
First I had Revlimid n Dexamethasone worked for 2 years, then Velcade n Dexamethasone, worked for a year then tried pomalyst n 40 mg of Dex, was so sick changed Dex to methylprednisolone still didnโt work, then Darzalex n Dex , worked for a few months, then Kyprolis n Dex seemed to be working then I had pneumonia and sepsis was in the hospital for over 2 weeks and dialysis for over 2months, just got of it so Chemo treatment was stopped cause my kidney still not fully recovered. Donโt know what my oncologist will do if I have to continue or try something else will find out Thursday when I go see him. What kind of myeloma you have? I have IgA kappa light chain outcome not as good as IgG I read somewhere. At least I am not in pain and I have recovered from my hospitalization and praying a lot cause I know God is the best Doctor and Healer. I am praying for you and all of us fighting for this myeloma ๐๐ฝ๐๐ฝ๐๐ฝ
Thanks for the information. I was trying to decipher your labs. So you only secret light chains and not IgG? I am IgG Lambda also. Sending hugs ๐
Randy you will be in my prayers. I have not experienced this so I have nothing to offer except prayers. Hugs. Keep us up to date