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A MyMyelomaTeam Member asked a question ๐Ÿ’ญ
Eads, TN

Weeks after my recovery from Covid my Oncologist re-started my regimen of Krypolis, Pomalyst, and Dex. After three treatments we found it didn't work anymore. In fact my kappa light chains continued to climb. So my Oncologist told me he will be starting me on new chemo when I see him this Wednesday. I don't know what these meds will be though. So since this regimen has stopped working this will be my 3rd relapse.

I am interested in patient's experiences starting a 4th regimen of chemoโ€ฆ read more

March 27, 2023
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A MyMyelomaTeam Member

You have had the monoclonal antibodies?

March 27, 2023
A MyMyelomaTeam Member

I have read about Teclistamab and plant to talk to my doctor about it Wednesday.

March 27, 2023
A MyMyelomaTeam Member

First I had Revlimid n Dexamethasone worked for 2 years, then Velcade n Dexamethasone, worked for a year then tried pomalyst n 40 mg of Dex, was so sick changed Dex to methylprednisolone still didnโ€™t work, then Darzalex n Dex , worked for a few months, then Kyprolis n Dex seemed to be working then I had pneumonia and sepsis was in the hospital for over 2 weeks and dialysis for over 2months, just got of it so Chemo treatment was stopped cause my kidney still not fully recovered. Donโ€™t know what my oncologist will do if I have to continue or try something else will find out Thursday when I go see him. What kind of myeloma you have? I have IgA kappa light chain outcome not as good as IgG I read somewhere. At least I am not in pain and I have recovered from my hospitalization and praying a lot cause I know God is the best Doctor and Healer. I am praying for you and all of us fighting for this myeloma ๐Ÿ™๐Ÿฝ๐Ÿ™๐Ÿฝ๐Ÿ™๐Ÿฝ

March 27, 2023
A MyMyelomaTeam Member

Thanks for the information. I was trying to decipher your labs. So you only secret light chains and not IgG? I am IgG Lambda also. Sending hugs ๐Ÿ’—

March 28, 2023
A MyMyelomaTeam Member

Randy you will be in my prayers. I have not experienced this so I have nothing to offer except prayers. Hugs. Keep us up to date

March 28, 2023

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