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I Have Severe Neuropathy Pain

I Have Severe Neuropathy Pain

Do anybody suffer with severe neuropathy pain as a result of the chemo received doing treatment and the stem cells transplant. Well I do every day. In addition to that every now and then the severe pain becomes worst than normal. On a scale of 1-10 with 10 being the worst it’s a 10 or more. I’m in that stat now as I write this with pain that brought tears to my eyes so I’m struggling to do this because for once I need an answer. Sometimes I feel alone when it happens. Please i have to know is… read more

posted November 22
A MyMyelomaTeam Member

Yes neuropathy in feet is bad. I am currently taking Cymbalta 1 am and 1 pm which has helped a lot, especially sleeping at night. Dr stopped Valcade , which is a major reason of neuropathy. it's been 4 months now and so much better.
😊

posted November 23
A MyMyelomaTeam Member

Peggie. You are not alone. I am so sorry your pain is so severe. The neuropathy pain can make you feel like you are losing your mind. I have neuropathy pian from medication. I take gabapentin 2 x a day and it keeps it at bay. I hope you can talk to your doctors about the pain and get more help. It took a while for the gabapentin to build up in my system but as long as I don’t miss I am mostly ok.
I will keep you in my prayers
Kate

posted November 22
A MyMyelomaTeam Member

Yes your pain is real! My husband has severe pain in his hip, (getting injections by onc surgeon), knee injections, lower back pain, just miserable! His MM Dr is perplexed. He has Palliative Care for pain mgmt! He takes Gabapentin & Oxy! You are not alone! I am going to show him your post!

posted November 22
A MyMyelomaTeam Member

Hi JD, I take cymbalta at night before I go to bed. I take valcade every three months. I didn’t know it was a major reason for my neuropathy. I’ll check with my doctor to stop it however I asked once before some time ago. I also take cymbalta for my mood and I thought that it was the main reason why I was taking it. I Lyrica three times a day for neuropathy seems like it don’t work other than if I stop my body will react as though I need to depend on it. Thank you so much for your advice!

posted November 23
A MyMyelomaTeam Member

Thank you so much!!💃🏽

posted November 22

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