I Have NON-SECRETORY Multiple Myeloma.
I am seeking others with this diagnosis. I had a stem cell transplant and have had extremely low values of IgG. IgA, and IgM. I did have 4 rounds of chemo prior to stem cell transplant and 2 infusions of IVIG
The chemo of the stem cell transplant eliminated all immunity I had as that is where the cancer cells are
I will have to have all my vaccinations again in about 6-8 months.
I have no immunity from all baby shots, flu vaccines. And Tetnus polio and other sources.
I am isolated and… read more
Here’s a non secretory study.
https://pubmed.ncbi.nlm.nih.gov/25382589/
It’s a little old from 2015. It seems to conclude it has more favorable longevity vs standard MM.
Looking for current studies should provide info based on the latest treatments.
I cannot remember his name but a man posted in the last day that he is nonsecretory. Annecares husband is also nonsecretory. I have a friend who is nonsecretory and she was diagnosed about 11 years ago
I don't have non secretory, but my immunoglobulins are all very low. They aren't giving me IgG because I haven't had major infections since my transplant. I too try to stay safe. I had all my baby shots over. Covid shots and boosters. I also got Evusheld in April. I get it again this month. I'm thinking of having titers drawn to see if the baby shots have given me any immunity. Trying to do all I can to stay healthy. Emory does bone marrow biopsies on all myeloma patients yearly. I get mine in November. Thank goodness they knock me out. How often will you get a biopsy?
Probably at 6 months post st em cell transplant.
If There Is No M Spike ( No Abnormal Protein Detected )?
Multiple Myeloma Diagnosis
Rare? Type Of MM
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