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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 29, 2022
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A MyMyelomaTeam Member

So I told my oncologist that after my sct I wanted to go on 5mgs. Of revlimid for maintenance not 10 mgs.
I had been on 10 mgs. All along. Maybe lower your dosage to 5 mgs.
I am basically in remission now. For how long?
My nueropathy in my toes has gotten slightly worse since the sct.?

June 28, 2022
A MyMyelomaTeam Member

I take Revlimid 3 weeks on one week off, but sometimes take a break due to low neutrophils. Every time I start back up my scalp itches insanely for about a week, then goes away. Also I now have rosacea but not sure it’s caused by Revlimid.

June 27, 2022
A MyMyelomaTeam Member

Yes, after two years on revlimid and five months out from my sct I am beginning to experience skin problems on my face. Small areas that are irritated but not bleeding, sometimes itchy. Also tender skin on sides of my arms. I see my oncologist this week and will see if I need to see a dermatologist about what is happening on my face. I am worried about melonoma, though I wear hats. I have started putting aloe on the facial spots which helps with the irritation 100%.
I worry about secondary cancers from the revlimid. I am also experiencing breast pain, but they found nothing.....so far

June 4, 2022
A MyMyelomaTeam Member

Thank you

May 31, 2022
A MyMyelomaTeam Member

I drink milk and eat a banana. It’s usually potassium or magnesium related. A good soak in epsom salt with camomile always helps.

May 31, 2022

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