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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Did Anyone Struggle With Anxiety Before MM?

Did Anyone Struggle With Anxiety Before MM?

I am diagnosed with anxiety and panic disorder and I am wondering if the dexamethsone makes it worse.

A MyMyelomaTeam Member said:

Absolutely-the Dex may play a role. I have mild anxiety and insomnia issues and my doctor lowered my Dex in half and this has helped. I take Ambien the night or two after Dex and that seems to help mood, sleep and anxiety

posted 3 months ago
A MyMyelomaTeam Member said:

I have the same diagnosis as you and some ptsd. Since I can not sleep after large doses of dexamethsone and I think clearer, I would have to say it acts like stimulant. Stimulants often increase anxiety symptoms.

The most beneficial therapy I have found for anxiety caused by multiple myeloma is medical marijuana. While nothing is perfect, it allows me to have more control over my symptoms than standard drug therapies offered to me in the past. I only take ridiculously small doses, as an added benefit I can take breaks from this therapy anytime I want. Education on this subject is key and I do not recommend using street drugs. Their are over 1000 strains of marijuana you need to understand what is in the plant and how to use it to your advantage. Precise dosing control is also important, start out with oral drops.

Have you ever witnessed and islander with anxiety?
Living in south Florida i can say it would be very rare.
Something’s work, something’s not and something’s are not popular, you just have to do what works for you.

Good luck,

Tom

posted 3 months ago
A MyMyelomaTeam Member said:

Kristen, Just wanted to sneak in here as I saw you were starting on Velcade. Heads up...velcade causes neuropathy. Even since I took it in 2019 they have learned to try to combat the side effect of neuropathy. You may wear ice mittens or ice boots and chew on ice during the treatment. Side effects of all these drugs can be different with each one of us...I pray your doctors find a good balance of your anxiety meds so you can have calm and peace. We have a God that invites us to Cast all our cares on Him...I pray you can feel His love for you and know He is carrying you through each day. Kathy

posted 4 months ago
A MyMyelomaTeam Member said:

I’ve always had anxiety and it got worse in 2017 I attributed it to being separated from my husband and a lot of turmoil with my son. I think that internally my brain knew without telling me that something was going on within my body. I was a very cranky woman from 2015 to 2017. I never expected this diagnosis. Even my mom had chronic lymphocytic leukemia and I just never thought that I would get it. It’s on my DNA strand but not active. The multiple myeloma is of the active cancer. And after being diagnosed with it holy crap. I cried and had nothing my stomach and butterflies every time I had to tell a family member that I had cancer. Even with that our own selves. I saw a commercial on TV with a little girl who said the worst thing about cancer is knowing that you have it. Over the past year and a half this team and my clinicians have given me such hope that we are not doomed. Whatever medication that they can give you for anxiety take it. We are not a glum lot! I’m praying for you. I know the dark twisty place that you go to I’ve been there as have most of us if I may take the liberty of saying so. Please stay in touch as I will stay in touch with you. Without even knowing you I can say that I love you. And I have so much respect for you for asking that question it’s a very good one it’s a very real feeling . In addition to any medication that they can give you I’ve been doing guided meditations. And they’re helping. Talk to as many people as you can stay in touch with people loved ones!

posted 4 months ago
A MyMyelomaTeam Member said:

@A MyMyelomaTeam Member I sent a message to you on fb. I don’t know if I have the correct Susan Jahnsen. It’s hard to tell from the picture.

posted 3 months ago
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