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Stage 1, Over 70, Stem Cell Transplant?
A MyMyelomaTeam Member asked a question 💭

Hi! I would like to know if anyone began protocols for Stem Cell Transplant when Stage 1 moved from smoldering to active (not Stage 2). My mother is on this road within 1 month of this advancement. As I research, I find that there are numerous options to consider AND Medicare guideline cover Stage 2 And 3.

Thanks!

posted December 6, 2021
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A MyMyelomaTeam Member

We came home at the end of 2019. I’m so thankful that we were done as far as having to stay in hospital. We only spent two weeks in the hospital after stem cell. Some stay longer. My husband is such a strong man of faith. He came through with flying colors. Hope you are doing well! I don’t know what would’ve happened with all those Covid protocols that were in place in 2020. Because I was not leaving my husband in the hands of nobody. Not on purpose but when hospitals get overwhelmed your love one pay the price. I refused to leave my husband alone.

posted January 23, 2022
A MyMyelomaTeam Member

Thank you for the feedback. This certainly is a beastly time to have to endure MM. I hope all is coming along well!

posted January 22, 2022
A MyMyelomaTeam Member

Hi my husband was stage 1 active in that the myeloma had actually eaten a hole in his right hip and femur bone. He was 75 at the time of diagnosis. They started him on the big 3 Revlimid, dexamethosone, Velcade injections, 2018. They also gave him Zometa for his bones and zofran for nausea, during this time period.This was to get his numbers down in order to do Stem Cell. They also put him on the anti viral Valtrex. Had a couple of setbacks during treatment complete hip replacement and pneumonia. So it took a year to get numbers down (Kappa light chains, protein IGg, IGa etc.) and we did stem cell in 2019. Was in Houston 4 months. Came home December and Covid hit.

posted December 22, 2021 (edited)
A MyMyelomaTeam Member

Hi, I just had SCT at 73, after initial diagnosis 9 months ago. 7 months of Velcade/Daramatumabab as preparatory protocol. Feeling well now, about to commence maintenance regimen, probably Revlimid oral, daily. My diagnosis was stage 3 or 4, unlike your mom's.

posted December 21, 2021
A MyMyelomaTeam Member

I went from Mugus ( quickly ), to Stage one. SCT was not an option because it was not necessary. I was told I started MM back in 2012. I was diagnosed in 2018. I was 71, I think , at the time. Why SCT so early? Everyone and every practitioner has different ideas. Maybe the idea is beat MM to the possible punch. My doctor wanted to watch my numbers and how I did. I'm in remission and have been since early into induction treatment.

posted May 23, 2023 (edited)

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