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Pain Management.
A MyMyelomaTeam Member asked a question 💭

Like so many with MM, pain is a major symptom. My husband is on Tramadol (an opiod) and Tylenol. Tylenol causes his kidney function numbers to rise, so he's hesitant to use this. And of course as we all know, opiods can and usually are addictive. CBD has been suggested, but he is also on blood pressure medication and has been told not to use CBD. So none of these choices is good. My question is: What are others doing for pain management? Also, has anyone had accupuncture, and if so, did… read more

posted June 18, 2021
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A MyMyelomaTeam Member

Anne, I have had acupuncture for my peripheral Neuropathy/ Circulation but not for pain. It did help me but got too expensive. Have you asked your doctor to order Tramadol or Hydrocodone without the Tylenol. I know they can with the hydrocodone. They add the Tylenol to increase the effectiveness of the medication, but he may not need it. Also, they have a time release Fentanyl Patch. You can start with a low dose ( I think it is 50 mcgm) and build up until it covers his pain. These patches are changed every 3 days. Hope he finds something that will cover his pain and be right for him. Have a good weekend! Love, Marcia 🌼🌸🌻

posted June 18, 2021
A MyMyelomaTeam Member

I'm on hydrocodone and fentynal. By far what I have found the most effective is physical therapy. The mm really hit my spine (my sacrum was gone by the time I was gone), pelvis (I have hardware in both hips and my back). By building up my muscles it's taking the weight and pressure off of my bones. It is by far not a quick fix but I am in the process of weaning off of the pain meds. I also get an infusion of Zometa once a month that pushes calcium out of my blood into my bones strengthening them. As with any drugs, make sure you are aware of the side-effects of any new drug. Good luck!

posted June 20, 2021
A MyMyelomaTeam Member

I use CBD gummies at night too. one contains just CBD and the other contains both CBD and THC. I take 1/2 of the gummy with THC and 1/4 of the CBD gummy. I am asleep in 30 minutes. I usually sleep 6 hours, very well. Do you use any other of the CBD products? I have a dear friend who has glioblastoma. She was given 14 months with treatment. She has far surpassed that and is still here almost 4 years! Her family swears it’s the CBD.

posted July 22, 2021
A MyMyelomaTeam Member

I use hydrocodone. My doctor suggested that I take it every 6 hours so that it would stay in my system. If I don’t, I pay for it and have to take twice as much to get back on track.

posted June 30, 2021
A MyMyelomaTeam Member

I have scoliosis and a 75%curve in my back. I take Hydrocone 20 Miligrams every day. It has not caused me any problems. My feeling is to take what helps. We are definitely all different.

posted June 19, 2021

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