My Husband Has Kappa Light Chain MM. When First Diagnosed..his Light Chain Was At 1800...he Has Gotten As Low As 400 .... | MyMyelomaTeam

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My Husband Has Kappa Light Chain MM. When First Diagnosed..his Light Chain Was At 1800...he Has Gotten As Low As 400 ....
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ

has now jumped to 800...doc changing meds...from Kyprolis, Revlimid and Velcade..to Daratumumab(Darzalex)....we are hoping this knocks the nbrs back down a bit....hoping for a transplant but not sure what the magic Kappa light chain nbr is going to have to get to..Doc is hoping to get it to 100....but.....

posted May 26, 2020
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A MyMyelomaTeam Member

Mel, There are several things they look at. Your doctor will want to do a bone marrow biopsy to see what % your Myeloma cells are at. They need t9 be around 10 % before they can harvest for @ stem cell. Love, Marcia ๐ŸŒธ

posted May 26, 2020
A MyMyelomaTeam Member

Well folks, itโ€™s 3 weeks since I have see the oral surgeon, there was nothing he could do, but he did send a letter to, and instructed my dentist on what she should do to alleviate the pain From the beginning of a small portion of jaw bone that was exposed. I saw my dentist today, and since I saw the oral surgeon, my jaw bone is totally exposed. Now the dentist is trying to reach to oral surgeon for another plan. Thank you Zomita and XGEVA!
This thing is ponding with pain constantly.
My dentist put me on an antibiotic and gave me Tylenol with codeine which only helps for a very short time. Hopefully,
When the antibiotic kicks in it will be better.
Gail
PS if you are on Zometa or XGEVA see you dentist very frequently for them to check for any potential problem In the making. Every 6 months was not enough for me.

posted July 21, 2020
A MyMyelomaTeam Member

I am on Kyprolis now, allergic to Revlimid, and pomalyst....my light chain numbers are way over the top....3300....was 6550 not out of woods yet.. good luck with yours

posted January 1, 2021
A MyMyelomaTeam Member

Are you also getting Kyprolis?? Husband's Doc gives him Kyprolis every other week.along with the Darzalex. .and also a 3x a week self administerd shot of Neuprogen to keep his white blood cells up.

posted July 26, 2020
A MyMyelomaTeam Member

I was on Velcade & revlimid. But revlimid made my whole face swell so I had to stop. On Darzalex for 7 months and numbers were great until last month. Hopefully will know more tomorrow after I speak to DR.

posted July 26, 2020

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