Connect with others who understand.

sign up log in
Resources
About MyMyelomaTeam

Connect with others who understand.

sign up log in
Resources
About MyMyelomaTeam

Myeloma Awareness: How To Get Involved

Posted on March 01, 2022
Article written by
Anika Brahmbhatt

If you’re living with multiple myeloma, you’re already aware of the impact blood cancer can have on your life — but chances are strong that other people in your orbit don’t know as much as they could about the disease. That’s why it’s important to raise awareness for this condition — particularly in March, which is Multiple Myeloma Awareness Month.

It can be hard when your friends and family don’t know what you’re going through. It can also feel difficult to say no to loved ones who don’t understand your situation. You might worry about how your relationships will be affected.

Raising awareness about myeloma is important so your friends, family, and caregivers can better understand how to support you.

Start by Raising Your Own Awareness

Before you can create public awareness by sharing information with others, it’s a good idea to understand the specifics about myeloma. Learn more about myeloma’s causes, signs and symptoms, and treatment options.

Multiple myeloma develops when a type of white blood cell (a plasma cell) becomes cancerous. Plasma cells reside in the bone marrow and produce antibodies that help the body fight infection. During myeloma, plasma cells develop abnormalities in their genes, leading them to grow out of control and build up in the bone marrow, forming tumors.

In most cases, multiple myeloma is not curable, but the effectiveness of new medications and regimens means that, for many people, myeloma is a chronic condition that can be managed with treatment. Some myeloma medications are so new that long-term data is not yet available. However, survival rates for people with multiple myeloma continue to improve.

Share Awareness Resources

After you’re armed with information about myeloma, you can share it with others for Multiple Myeloma Awareness Month. The fastest and least expensive way for this kind of advocacy is through social media. You can post information about myeloma, share details about the condition, and join communities of other people who are also working to raise awareness about myeloma.

You can share information booklets from the Leukemia & Lymphoma Society or share messages from the International Myeloma Foundation on Facebook or Twitter.

To ensure your messages on social media reach as many people as possible, consider using an appropriate myeloma-related hashtag, like #MyelomaAwareness or #MyelomaAwarenessMonth. This way, your posts will be seen by more people who have the same interests, and they’re more likely to share and comment.

Social media helps raise awareness for the condition, and it also allows other people with myeloma to realize they aren’t alone. Joining a myeloma community on social media, such as MyMyelomaTeam, can also help you connect with others.

Participate in Awareness Activities

Another way to raise awareness about myeloma is to participate in an activity dedicated to the cause. You can walk or run for myeloma, play bingo, participate in fundraising activities, or even create a unique event that works for your interests. You can help other people understand more about myeloma while having fun and raising money for the cause.

One MyMyelomaTeam member wrote of attending a myeloma awareness event last year, “It was so great to join the event for MM Awareness Month and to meet some of you!”

If you are able, you can also donate (or encourage others to donate) to the International Myeloma Foundation to support myeloma advocacy and cancer research.

In addition, remember to engage in self-care. It is emotionally taxing to educate others about your lived experiences, so know your limits and accept when to put your mental well-being first.

Connect With Others Who Understand

On MyMyelomaTeam, more than 14,000 people living with myeloma come together to ask questions, give advice, and share their stories with others who understand life with the condition.

Share your myeloma journey in the comments below, or start a conversation by posting on your Activities page.

All updates must be accompanied by text or a picture.
Anika Brahmbhatt is an undergraduate student at Boston University, where she is pursuing a dual degree in media science and psychology. Learn more about her here.

Related articles

Working while undergoing treatment for multiple myeloma is a personal decision with several...

Working With Multiple Myeloma

Working while undergoing treatment for multiple myeloma is a personal decision with several...
A myeloma diagnosis is a life-changing event that can alter the way you think about your future....

Medical Power of Attorney and Myeloma

A myeloma diagnosis is a life-changing event that can alter the way you think about your future....
Different medications and procedures can be effective for treating multiple myeloma, but they can...

How To Get Multiple Myeloma Treatment Without Insurance

Different medications and procedures can be effective for treating multiple myeloma, but they can...
People with multiple myeloma may be eligible for additional doses of the Pfizer and Moderna...

Are People With Myeloma Eligible for Moderna and Johnson & Johnson Booster Shots?

People with multiple myeloma may be eligible for additional doses of the Pfizer and Moderna...
Multiple myeloma is a cancer of plasma cells. This disease can present a variety of challenges,...

Living With Multiple Myeloma

Multiple myeloma is a cancer of plasma cells. This disease can present a variety of challenges,...
People with multiple myeloma currently may be eligible for a third dose of the Pfizer and Moderna...

COVID-19 Vaccine Boosters and Additional Doses for People With Myeloma: Current Guidelines

People with multiple myeloma currently may be eligible for a third dose of the Pfizer and Moderna...

Recent articles

Every myeloma therapy option comes with potential benefits and potential risks.Your doctor will...

Weighing the Risks and Benefits of Myeloma Treatment Options

Every myeloma therapy option comes with potential benefits and potential risks.Your doctor will...
Thanks to years of cancer research and public-health messaging, most people understand that...

Smoking and Multiple Myeloma

Thanks to years of cancer research and public-health messaging, most people understand that...
Around 63 percent of people newly diagnosed with myeloma are also living with — or have a history...

Understanding Heart Disease and Myeloma Treatment

Around 63 percent of people newly diagnosed with myeloma are also living with — or have a history...
Multiple myeloma is a cancer in which white blood cells called plasma cells develop abnormalities...

Myeloma and Ethnicity: Is Race a Risk Factor in Multiple Myeloma?

Multiple myeloma is a cancer in which white blood cells called plasma cells develop abnormalities...
Feelings of worry, fear, and anxiety are common when living with cancer such as myeloma. In fact,...

Managing Anxiety and Myeloma

Feelings of worry, fear, and anxiety are common when living with cancer such as myeloma. In fact,...
People with multiple myeloma at any stage can benefit from palliative care. This type of care can...

Palliative Care: Improving Quality of Life With Myeloma at Any Stage

People with multiple myeloma at any stage can benefit from palliative care. This type of care can...
MyMyelomaTeam My myeloma Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close