"But that's not the way it's supposed to be!" is a common thing we say when our expectations fall short. It happens to all of us. Some members of MyMyelomaTeam have found the practice of "allowing and letting be" in the midst of a trying time to be a way to minimize anxiety or disappointment.
Mindfulness experts suggest a few ways that we can notice -- not push away -- how we feel during difficult moments. There may be physical responses (heaviness in the shoulders, tightness in the chest) as well as emotional responses (blame, self-doubt, exasperation) to disappointment that we can notice without responding to. Noticing these sensations without reacting can be opportunities to realign our expectations and extend grace to ourselves.
Here are recent conversations from MyMyelomaTeam members:
"I have had a wonderful day, Actually I have had a Fantastic WEEK. I feel good, can think straight and most importantly I am not exhausted wondering when my next nap is. I am so grateful for these days of feeling good."
"A great day because I had my monthly blood work and infusion and my annual bone marrow biopsy. The nurse doing the biopsy did a terrific job and the discomfort was minimal! A good day, indeed!"
"Every day in remission is a good day, even when it’s a bad pain day. I got to enjoy the smiles on my kids' faces. That also makes for a good day. Keep your chins up."
Share how you respond when things fall short of your expectations in the comments below or directly on MyMyelomaTeam.com.