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Nelson, Go to three bars on upper left. Go down to settings then go to account setting then location. Hope you get it changed successfully. Happy Easter! Love, Marcia🌸
Alone going through this suffering. Doctors don’t always tell you everything especially the side effects of the drugs we’re taking. Group therapy really keeps me going. Also Happy NewYear. I look at it this way, “ I beat the SOB’s another year 😘😘😁😁👍👍
Merry Christmas and Happy New Year!
MM family, Am tourched to hear that you pour your hearts to God the listener of prayers. The Bible gives us excellent example of Jesus he was a praying son he had confidence in his father. His… read more
This is a better defined test of the Kappa and Lamda heavy and light chains
This test is available for all Ig types. It more accurate than SPEP and IFE
If so, where are you getting it from and is it covered by insurance
I’ll be looking into that and add to this Post
Mass Spectrometry Testing (MST) is a far more accurate way to test for MM activity but I think it’s only available at limited facilities
If you’re getting MST, where ?
Thank you @A MyMyelomaTeam Member I'll definitely do that!
I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
About 2 months before my grant is up for the year they send me another application, I fill it out give it to my Oncologists office they fill out their part and fax it to the pharmaceutical Co. for… read more
Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!
Which ones did you keep and are there any that you allowed yourself to not keep? What do doctors recommend?
I had a tandem transplant. After the first one I was only allowed near my car givers and advised to avoid the outside world and i had to take acyclovir since my immune system was trashed. After… read more
I’d like to propose a Test for the members of this Forum that would be able to participate
The idea is to compare your MSpike Results to a Blood Sample (Labs) clonoSEQ Test Results
I’ve recently discussed Labs - Blood Sample clonoSEQ Testing with my Onc at Johns Hopkins (JH). When a person is Negative, JH now accept a Blood Sample clonoSEQ test as a Valid Method to Track a person's MRD Status
Unfortunately, JH feels there's no value in getting a clonoSEQ test (even from a simple blood sample)… read more
Congrats on being Negative
Search for Dr Costa Master Trial
He did a Clinical Trial and concluded if you’re clonoSEQ MRD Negative and two or less high risk factors, that after staying Negative for… read more
I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏
@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️
@A MyMyelomaTeam Member
I have a heart condition too. Many medications are not recommended if you have heart issues. SCT’s are hard. I don’t think I could do it, and I don’t think my doctor would… read more
