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I will ask our members at our support group meeting tomorrow. Several members are on darzalex.
Which ones did you keep and are there any that you allowed yourself to not keep? What do doctors recommend?
I had a tandem transplant. After the first one I was only allowed near my car givers and advised to avoid the outside world and i had to take acyclovir since my immune system was trashed. After… read more
I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏
@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️
Check out Dr Brandy’s book “Beat Back Cancer Naturally” for a list of supplements. He is being treated for MM but believes a plant based diet and supplements help keep his high risk MM in check… read more
Are you flossing everyday? Brushing twice a day? It’s important to brush along the gum line with a soft toothbrush.
Multiple myeloma for the last 9 years and have never been as tired as I have been for the last two weeks!
I responded to an previous comment about how sugar brought on fatigue
I just read an article about why it's important. It's because D3 helps you to absorb calcium and K2 tells the Calcium where to go! It directs the calcium to the bones instead of the soft tissue, which can cause atherosclerosis and heart attacks. It also activates osteocalcin, which holds calcium to bone. I don't like taking supplements, so I pull my calcium supplements apart and pour them into my yogurt. I hope this helps someone. It has made a huge difference in my osteoarthritis pain and… read more
Ask about reducing your blood thinners - it's a healthier solution
My step father's result has shown stage 1 Multiple Myeloma
Is there anyone out there who considered both of these options? Which did you pick and why? I'd love to know anyone's experience with either of these myeloma centers. They are both about the same distance from us. My husband thinks it would be easier to drive in Little Rock, but I'm doubtful that's the best reason for making an important medical decision! But I'm thrilled he has finally acknowledged the importance of a 2nd opinion.
Hey, Jackie! I hope you're doing well. We're not looking forward to driving to either B'ham or LR, but I think a 2nd opinion will be useful.
After discussing the X-rays with my dentist, he explained that the medications make our mouths stay dry and sets us up for developing cavities because the saliva that usually helps wash the bacteria away is not there. I wish someone had mentioned this so I could try to prevent what has happened.
Lack of saliva is a contributing factor. As I must use inhalers for asthma as well, extra vigilant hygiene is a must. Rinsing after each inhaler use, flossing, & brushing 2x daily.
