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Top 10 Search Results for "question dot dot dot that has me a little puzzled"

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What Treatment Can Anyone Recommend For Neuropathy On My Feet And Toes?

What Treatment Can Anyone Recommend For Neuropathy On My Feet And Toes?

Drugs treatment plan was Revlimid, Velcade, Dexaethasone. I stopped the Velcade once numbness and tingling got worse. I continue now with lower dose of Revlimid and Dexaethasone. The pain in my feet has gotten worse and have tried natural remedies but no relief. Dr prescribed Gabapentin and have taken now for a few weeks but was told it takes longer before I would notice if it’s helping. Had some bad side effects so now taking Lyrica which seems to be helping to take the burning sensation away… read more

A MyMyelomaTeam Member said:

Velcade gave me neuropathy. It is painful. Keeps me awake

posted 9 months ago

Multiple Myeloma And Teeth Pain

Multiple Myeloma And Teeth Pain

I have been having a lot of bottom teeth pain for the last couple of weeks. I went to the dentist today for a check up and everything was good. Does anyone have this issue with multiple myeloma? I’m a little worried about this since it’s not a dental issue. Called my oncologist today, waiting for a call back.
God bless all of you!

A MyMyelomaTeam Member said:

By the way, I’m speaking about my husband

posted about 1 month ago

Let’s After Stem Cell Transplant

Let’s After Stem Cell Transplant

I’ve been told I can’t be around my dog for 100 days after my stem cell transplant. All of you dog lovers how did you do it? I have a 2 year old standard poodle that is connected to my hip!!! I need your suggestions and help!!!!

A MyMyelomaTeam Member said:

Funny how most here got slightly different suggestions from our doctors
Bottom line is we have very little to no, immunity after an SCT
I don't see where anyone who responded here took a highly… read more

edited, originally posted about 2 months ago

Hypogammaglobulinemia

Hypogammaglobulinemia

My SEP has shown this for last 3 months. I know it shows that patient is prone to infections but other than that very little. Dr. does not seem concerned. Does anyone have experience with and /or more knowledge of this?

A MyMyelomaTeam Member said:

Thank you, Peter, for this info re myelomacentral.

posted about 1 month ago

Autologous Stem Cell Transplant Question?

Autologous Stem Cell Transplant Question?

Hi
I am in the process of getting an Autologous SCT. I have to admit it's been a bigger life event than I expected. Currently I am on Day 9-since stem cell infusion. Fortunately-a lot of the side effects from chemo-like diarrhea and muscle aches, etc. have greatly reduced. I am of course still very tired and dizzy at times ( related to low BP) My WBC count seems to be very slowly creeping up-now at .26-and am getting Neupogen shots. My red blood cells are on the low side-but not to serious and… read more

A MyMyelomaTeam Member said:

Thanks Farmette! Hope you are doing well and recovered!

posted 4 days ago

Osteonecrosis Of The Jaw

Osteonecrosis Of The Jaw

Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.

A MyMyelomaTeam Member said:

I was on Zometa and had an allergic reaction and then switch over to Xgeva. No reactions thus far and have been on it for about 24 months.

posted 4 months ago

Can Anyone Explain Why Some Drs Only “watch” MGUS Patients And Others Do Further Testing?

Can Anyone Explain Why Some Drs Only “watch” MGUS Patients And Others Do Further Testing?

I’m recently dx w/MGUS. My dr dismissed my back pain, didn’t ask if I had any questions, explained what MGUS was and told me to have labs redone in 6 months. I feel left in the dark. I knew what MGUS and myeloma were by doing a lot of research before appt. I had questions and have no answers. Anyone have suggestions on what I should do? My family questions why no further tests were done. Since I’m new to this I don’t know if this is the norm. Thank you.

A MyMyelomaTeam Member said:

You need pain management / meds. It is impossible to do the things needed to fight this disease, and have any quality of life if you are in constant pain. My team's plan of action was; 1) prevent… read more

posted about 20 hours ago

Diet

Diet

I'm wondering how important is diet? When I was first diagnosed I read a lot about diet. But when I asked my Dr he said eat what ever you want.... I'm wondering if any one has any other thoughts on this. Has your Dr talk to you about diet. I read alkaline diets are good. Because I'm still on no treatment and would like to stay that way. I'm wondering if any one has thoughts on it
I'm getting a little scared it's growing because I have a lot of back pain. But it's just pain not a specific place… read more

A MyMyelomaTeam Member said:

Donna Andrew thanks for the hug and hope all is well with you.

posted 12 months ago

Pain Management.

Pain Management.

Like so many with MM, pain is a major symptom. My husband is on Tramadol (an opiod) and Tylenol. Tylenol causes his kidney function numbers to rise, so he's hesitant to use this. And of course as we all know, opiods can and usually are addictive. CBD has been suggested, but he is also on blood pressure medication and has been told not to use CBD. So none of these choices is good. My question is: What are others doing for pain management? Also, has anyone had accupuncture, and if so, did… read more

A MyMyelomaTeam Member said:

I take 2 gabapentine at bedtime and an OxyContin
Also rub blue emu on my numb feet and sear loose fitting socks

posted 9 months ago

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more

A MyMyelomaTeam Member said:

AMEN! EVERYDAY IS A BLESSING!

posted 10 months ago