Drugs treatment plan was Revlimid, Velcade, Dexaethasone. I stopped the Velcade once numbness and tingling got worse. I continue now with lower dose of Revlimid and Dexaethasone. The pain in my feet has gotten worse and have tried natural remedies but no relief. Dr prescribed Gabapentin and have taken now for a few weeks but was told it takes longer before I would notice if it’s helping. Had some bad side effects so now taking Lyrica which seems to be helping to take the burning sensation away… read more
I'm wondering how important is diet? When I was first diagnosed I read a lot about diet. But when I asked my Dr he said eat what ever you want.... I'm wondering if any one has any other thoughts on this. Has your Dr talk to you about diet. I read alkaline diets are good. Because I'm still on no treatment and would like to stay that way. I'm wondering if any one has thoughts on it
I'm getting a little scared it's growing because I have a lot of back pain. But it's just pain not a specific place… read more
Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.
Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more
Like so many with MM, pain is a major symptom. My husband is on Tramadol (an opiod) and Tylenol. Tylenol causes his kidney function numbers to rise, so he's hesitant to use this. And of course as we all know, opiods can and usually are addictive. CBD has been suggested, but he is also on blood pressure medication and has been told not to use CBD. So none of these choices is good. My question is: What are others doing for pain management? Also, has anyone had accupuncture, and if so, did… read more
I am getting ready to go on a cruise to a tropical country. It is recommended that travelers get vaccines for Hep.A, typhoid, and medication for malaria. Is that going to be a problem for me? Any recommendations for precautions?
I was on pamidronate for two years every three months for a total of 10 infusions. I'm heading to transplant and I need to have a tooth pulled prior. What is the risk of necrosis with the extraction? Is it the same as Zometa?
When one is diagnosed with MM, is MGUS and/or Smoldering MM always a precursor which goes undiagnosed until the full-blown MM diagnosis? Just wondering how long before my husband's MM diagnosis in March 2019 might he have had MGUS and/or Smoldering MM and no one identified it. He is of the opinion that he had it long before, since the pelvic lesions and the spine vertebrae deteriorations had advanced so far.