I just had my first follow up after my SCT in November with my local oncologist. He just yelled at me because the nurse didn’t go through my med list one by one. She asked if anything changed. No. I stupidly asked doc if he really felt I should be taking 2400 calcium daily with D3 if my calcium is 10 already. He screamed at me there’s nothing here about your calcium pills. Final answer was ‘ it says you’re taking 200 a day’. No clue why his report said that, but he had no answer for me. He has… read more

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

Hi, just wanted to tell you a little of what I have learned this week. My husband Ed, (was diagnosed with MM in 2016) has Necrosis of the jaw. He was on Zometa for three years. Longer than recommended. He has recently had to have some teeth pulled. They were just crumbling, and his own dentist could not keep up with them. She spoke to a surgeon Ed has seen in the past, who had not wanted to pull any of his teeth, because of the necrosis. The surgeon agreed that they would have to come out… read more

My husband is being seen by a blood cancer oncologist. He has been diagnosed with MGUS. His Kappa # is 38. Notes in his blood tests say possibly SMM. Many blood numbers/results are not normal. He is currently suffering with major headaches and bone pain in his head. He has little energy. He has neuropathy in both legs/feet. He can't walk a mile without being out of breath. This is so not normal for him.

I am extremely frustrated with his doctor. We go in and the doc says " how are you". My… read more

I have had bloodwork done (came back) and proteins are high & all points to mutiple myeloma - BUT I can't get into my GP for weeks & waiting for a MRI -- sitting in referral (whether necessary or not) - QUESTION --
should I move forward on my own accord in finding a hemotologist -- seeing if I can get things to move along faster? OR -- I might try another doctor (that has been recommended) outside this town?

HELP -- not sure how to proceed in this situation

Thanks again awesome team!