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Top 10 Search Results for "question dot dot dot that has me a little puzzled"

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What Treatment Can Anyone Recommend For Neuropathy On My Feet And Toes?

What Treatment Can Anyone Recommend For Neuropathy On My Feet And Toes?

Drugs treatment plan was Revlimid, Velcade, Dexaethasone. I stopped the Velcade once numbness and tingling got worse. I continue now with lower dose of Revlimid and Dexaethasone. The pain in my feet has gotten worse and have tried natural remedies but no relief. Dr prescribed Gabapentin and have taken now for a few weeks but was told it takes longer before I would notice if it’s helping. Had some bad side effects so now taking Lyrica which seems to be helping to take the burning sensation away… read more

A MyMyelomaTeam Member said:

Velcade gave me neuropathy. It is painful. Keeps me awake

posted 5 months ago

Diet

Diet

I'm wondering how important is diet? When I was first diagnosed I read a lot about diet. But when I asked my Dr he said eat what ever you want.... I'm wondering if any one has any other thoughts on this. Has your Dr talk to you about diet. I read alkaline diets are good. Because I'm still on no treatment and would like to stay that way. I'm wondering if any one has thoughts on it
I'm getting a little scared it's growing because I have a lot of back pain. But it's just pain not a specific place… read more

A MyMyelomaTeam Member said:

Donna Andrew thanks for the hug and hope all is well with you.

posted 8 months ago

Osteonecrosis Of The Jaw

Osteonecrosis Of The Jaw

Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.

A MyMyelomaTeam Member said:

I was on Zometa and had an allergic reaction and then switch over to Xgeva. No reactions thus far and have been on it for about 24 months.

posted 13 days ago

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more

A MyMyelomaTeam Member said:

AMEN! EVERYDAY IS A BLESSING!

posted 6 months ago

Survival Rate For Multiple Myeloma

Survival Rate For Multiple Myeloma

A MyMyelomaTeam Member said:

I am glad that my comments are helping others too fight MM.

posted 3 months ago

Pain Management.

Pain Management.

Like so many with MM, pain is a major symptom. My husband is on Tramadol (an opiod) and Tylenol. Tylenol causes his kidney function numbers to rise, so he's hesitant to use this. And of course as we all know, opiods can and usually are addictive. CBD has been suggested, but he is also on blood pressure medication and has been told not to use CBD. So none of these choices is good. My question is: What are others doing for pain management? Also, has anyone had accupuncture, and if so, did… read more

A MyMyelomaTeam Member said:

I take 2 gabapentine at bedtime and an OxyContin
Also rub blue emu on my numb feet and sear loose fitting socks

posted 6 months ago

Am I Considered Immuno-compromised If I Have Smoldering Multiple Myeloma?

Am I Considered Immuno-compromised If I Have Smoldering Multiple Myeloma?

I am getting ready to go on a cruise to a tropical country. It is recommended that travelers get vaccines for Hep.A, typhoid, and medication for malaria. Is that going to be a problem for me? Any recommendations for precautions?

A MyMyelomaTeam Member said:

I have Smoldering Myeloma and MDS and this is all new to me. Any advice would be helpful.

posted 11 months ago

I Have Chronic Myeloma Leukemia. There Not A Lot Of Information On It. Does Anyone Else Have His?

I Have Chronic Myeloma Leukemia. There Not A Lot Of Information On It. Does Anyone Else Have His?

A MyMyelomaTeam Member said:

SusanSLounder, This is not our area of expertise. This belongs to the Leukemia Family. I would contact the LLS - Leukemia, Lymphoma Society. They will have Support Groups and Resources for you… read more

posted 3 months ago

Aredia

Aredia

I was on pamidronate for two years every three months for a total of 10 infusions. I'm heading to transplant and I need to have a tooth pulled prior. What is the risk of necrosis with the extraction? Is it the same as Zometa?

A MyMyelomaTeam Member said:

Marcia Holman thanks for the hug and hope you are doing well. Jodi I would definitely check with your oncologist first because I had too go too a dentist specialist that dealt with cancer patients and… read more

posted 9 months ago

MGUS And/or Smolering MM

MGUS And/or Smolering MM

When one is diagnosed with MM, is MGUS and/or Smoldering MM always a precursor which goes undiagnosed until the full-blown MM diagnosis? Just wondering how long before my husband's MM diagnosis in March 2019 might he have had MGUS and/or Smoldering MM and no one identified it. He is of the opinion that he had it long before, since the pelvic lesions and the spine vertebrae deteriorations had advanced so far.

A MyMyelomaTeam Member said:

Thank you Tom McKay and, Cory, Carolyn Hernandez, Angela C. Scalosi ALL FOR YOUR COMMENTS. I think this is an ever changing disease. Reading all of your comments helps to relieve my worries an gives… read more

posted over 1 year ago