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So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
I am now in Active MM and it is escalating at an alarming rate. My light chain ratio went from 80% to 182% in 4 weeks. All the other numbers are also going crazy. I start chemo Tuesday. I will be on the following:
Daratumad, Velcade, and Cyclophosphamide. Any advice would be greatly appreciated.
Laurie,
People confuse “Never, ever give up, with Never lose faith.” I like to think that as each day starts, I’m one step closer to Paradise, so I better start tidying up.
Hello all! I hope everyone is doing well. I’m wondering if my work career had anything to do with my issues. I worked as a R&D lab technician for 27 years and as a chemical operator for 7. The lab tech job had me working with toluene di-isocyanate, amine catalysts, styrene, ethylene oxide, propylene oxide, and other chemicals. My operator job at the plant dealt with producing pesticides. In that job, I worked with sulfur di-chloride, methomyl, pyridine, and methanol
The lab tech job comprised… read more
I did a ton of reading on this when I first got diagnosed with MM. I'm a carpenter and on the high risk list. The medical and scientific world conclude MM can't be said to be genetic, and they don't… read more
Original diagnosis of lambda light chain myeloma but in remission after stem cell transplant
Cathy the light chain ratios are hard to understand. They can go up and down some too. I think they are more concerned with the pattern from month to month. All the best, Doloresđź«‚
High blood sugar
Insulin resistance
Some people on dexamethasone have had a rise in their sugar levels. Hopefully others will share their experiences.
Welcome Louise. I am sorry for your loss. Take care.❤️ We're here for you 🙏🏽
I’m sorry you are dealing with myeloma
I can only be grateful for how much research has been done and the success they’ve made in treating myeloma just in the past 5-10 years
Sending you love and… read more
Seems like they have told me everything has chance of secondary cancers. Probably true. My primary cancer is primary concern
No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more
