It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
Mines low. Like 2.8 low. They lowered my dose of revlimid and have given me a couple shots (forgot what it was) but didn’t help much. I just am careful with food and crowds and pray.
Have shortness of breath, but also have amyloidosis. If have blood clots , cardiologist should have you on Eliquis Downside is bleeding and bruising but stops clots and prevents strokes
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
I was told by my oncologist that any cancer can cause blood clot formation
with steady but not improving test results ??
thanks to all....thinking of changing drugs or dosages to break the 'satisfactory' stalemate and look for remission....
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
How long does it take for MGUS to progress to Multiple Myeloma
After watching some of Dr Brandy’s talks online, I was amazed at how smart he is. He has MM too and is doing quite well.
I feel fine, but I know my ANC is dangerously low. My doctor will probably have me start injections of neupogen.
Thanks,
Kara
I have a gain of 1q. which puts me at high risk.
Ask your MD.