Xpovio and myeloma | MyMyelomaTeam

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Xpovio"

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Top 5 searches:
Is There Someone Who Is On Xpovio?
A MyMyelomaTeam Member asked a question 💭
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Have Any Of You Taken Xprovio?
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

I have been on Xpovio for almost two cycles. I unfortunately, have almost every side effect noted. The main ones are Extreme Fatigue, Low Blood Counts, Nausea, and Bloating. I am on a once a week… read more

Can Someone Get Bk Into Remission, Even Whn The Disease Has Started To Cause Bone Pains?
A MyMyelomaTeam Member asked a question 💭

Diagnose in 2018. Had all the pills,,to being onKyprolis,& recently started Xpovio, for a short time-due to not liking the side effects. So we wait for 2 mos to know what to do next as we watch the IgA levels. They r in the 600s.

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7 Symptoms of Multiple Myeloma Relapse To Look Out For Read Article...
A MyMyelomaTeam Member

My last lab said my IgA was 599. I have Smoldering MM and no plans for treatment yet. I’m holding back bone pain by taking 1,000 mg of Calcium with MCHA and D3 & K2 for absorption. Curcumin helps with… read more

After The SCT Where Do You Get Your Vaccines ?
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A MyMyelomaTeam Member

I went to my family practitioner. I have completed 2 rounds. Its fun going in and running out of arms and butts to poke 7 needles. But seriously, the nurse who gave mine did an excellent job.

Childhood Immunizations
A MyMyelomaTeam Member asked a question 💭

can people start their childhood immunization before 1 year or should be 1 year post transplant exactly

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A MyMyelomaTeam Member

I saw my hematologist/oncologist on Tuesday and he said NO LIVE VACCINES IF YOU ARE ON ANY KIND OF CHEMO OR IMMUNOMODULATORY MEDS. I didn’t know this - saw the MMR on the list for the 2 year mark and… read more

What Shots Were Recommended After Your Transfusion ? They Told Us All Your Childhood Shots Were Wiped Out And To Get Them Again .
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Hi there. How did you tolerate 100 days in isolation after your SCT? I'm considering a transplant but with my family living in the same house I'm afraid I'll get an infection. This is keeping me from… read more

Revlimid
A MyMyelomaTeam Member asked a question 💭

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

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A MyMyelomaTeam Member

Seeeee.....I wish I was so curious and able to understand complex ideas.

What Does It Mean When Your Labs Results Come Back Saying Your Kappa Lambda Light Chain Is High
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Thank you for that very informative explanation @A MyMyelomaTeam Member !

What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Don't sweat the small stuff!! I rest when my body tells me to. I try to control my stress level. I take magnesium in higher quantities (restless legs) vitamin D & K faithfully. I try to move daily… read more

How Many People Contracted Multiple Myeloma Since This Covid-19 Pandemic Started?
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

My husband was diagnosed after Covid pandemic.