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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Hello, I Started XPOVIO Yesterday. Has Anyone Tried This Medication?

A MyMyelomaTeam Member asked a question đź’­
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A MyMyelomaTeam Member

Sorry to hear and I hope your vision improved.

Thanks for the info, it’s one is the side effects but I’ll monitor my vision for changes.

Is There Someone Who Is On Xpovio?

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Have Any Of You Taken Xprovio?

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A MyMyelomaTeam Member

I have been on Xpovio for almost two cycles. I unfortunately, have almost every side effect noted. The main ones are Extreme Fatigue, Low Blood Counts, Nausea, and Bloating. I am on a once a week… read more

Can Someone Get Bk Into Remission, Even Whn The Disease Has Started To Cause Bone Pains?

A MyMyelomaTeam Member asked a question đź’­

Diagnose in 2018. Had all the pills,,to being onKyprolis,& recently started Xpovio, for a short time-due to not liking the side effects. So we wait for 2 mos to know what to do next as we watch the IgA levels. They r in the 600s.

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7 Symptoms of Multiple Myeloma Relapse To Look Out For Read Article...
A MyMyelomaTeam Member

I take MRM Bone Maximizer III, which has Microcrystalline hydroxyapatite (MCHA) which it says supports bone health and builds bone density. Strontium Citrate is another bone builder. You take it at… read more

What Shots Redo After Your Bone Marrow Transplant From Your Childhood That Were

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A MyMyelomaTeam Member

I’ll get more my next visit.

After The SCT Where Do You Get Your Vaccines ?

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A MyMyelomaTeam Member

Medicare Part D covered all of mine. Yes, there a doubles and triples...same routine for infants. Keep in mind, the SCT wiped out your immunities, and you are starting over.

Childhood Immunizations

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can people start their childhood immunization before 1 year or should be 1 year post transplant exactly

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A MyMyelomaTeam Member

I saw my hematologist/oncologist on Tuesday and he said NO LIVE VACCINES IF YOU ARE ON ANY KIND OF CHEMO OR IMMUNOMODULATORY MEDS. I didn’t know this - saw the MMR on the list for the 2 year mark and… read more

I Am Day 36 Since My Stem Cell Transplant & Have Zero Energy. It Is Really Depressing Me. Anyone Else Go Through The Same Experience?

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A MyMyelomaTeam Member

Hi Cindy, Try watching funny movies. One of my favorites is Uncle Buck, with John Candy”. Hope this helps. This illness can get you down, I’ll admit, but we must keep fighting and moving forward.

Have Most Of You Gotten Your Flu, Pneumonia, RSV, Covid Vaccines. My Oncologist Has Not Mentioned Getting Any Of These? A Bit Surprised!

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A MyMyelomaTeam Member

I hear a new Covid vaccine will be available around Labor day. It will be updated for the latest variants.

What Does It Mean When Your Labs Results Come Back Saying Your Kappa Lambda Light Chain Is High

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A MyMyelomaTeam Member

When lab results indicate that your kappa lambda light chain ratio is high, it can be a sign of light chain multiple myeloma. This condition involves the overproduction of one type of light chain… read more