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Top 10 Search Results for "VP-16"

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I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

A MyMyelomaTeam Member said:

Wow, congratulations! Your question is very encouraging. I'm scheduled to have my stem cells harvest in July, and I'm a little nervous but looking forward to living with out the disease limiting me.

posted 4 days ago

Leg Weakness

Leg Weakness

My husband was diagnosed with Multiple Myeloma in 2016. He's undergone treatment first with Revlimid/Velcade/Dexamethasone then on maintenance dose of Revelimid, and now on Darzalex/Pomalyst/Dexamethasone. He tolerates the treatment welll, but has serious weakness in his legs. Without his arms helping to propel him up, he wouldn't be able to stand. His balance has progressively gotten worse. We've seen several neurologists, but still have no answers as to what's causing this weakness. We… read more

A MyMyelomaTeam Member said:

Gotta build up anti-toxicins, eat strawberries, cranberries/and juice, oatmeal, and broccili, vit B-12. ALL Manner of green veggies, Drink Sour-sop tea, flush system as often as possible!

posted 4 days ago

Handle Foot/hand Cramps

Handle Foot/hand Cramps

3 hours after Dara infusion with Dex I started getting hand and foot cramps (not new at all, but..) something has been cramped now for 16 continuous hours (right now, my right hand. Makes typing easy...)

Am I alone?
Has anyone found a good way to attack this?
Thanks

A MyMyelomaTeam Member said:

Thanks, I'll try both.

posted 6 months ago

Teeth Implants

Teeth Implants

I'm wondering if anybody that is still receiving treatment had implants put in and did they see a regular doctor or did they see a special kind of dentist that deals with people with cancer or MM?

A MyMyelomaTeam Member said:

Greetings from Alaska I have a very expensive post and I cannot continue with the process to get my tooth placed infection is a strong possibility I too had a SCT only 142 days ago. Transplant doctor… read more

posted 6 days ago

Has Anyone Been Able To Lose Weight, While On Dexamethasone? If So, How?

Has Anyone Been Able To Lose Weight, While On Dexamethasone? If So, How?

A MyMyelomaTeam Member said:

Greetings from Alaska I walk just about every morning and I took two extra strength Tylenol before I head out because my back always hurts today I forgot to take them so I had to cut my walk short… read more

posted 2 days ago

Diarrhea And Rash

Diarrhea And Rash

Taking revlamid for almost a year with no problem and suddenly I developed a rash and now have diarrhea. Anyone have these problems? Thanks

A MyMyelomaTeam Member said:

Keep trying to get the grey cells to work. Crossword puzzles, word find games, crafts, crocheting, knitting, etc
While I was on Revlimid my brain did the same thing
Knitting and playing Words with… read more

posted about 1 year ago

Darzalex

Darzalex

I start this med tomorrow I'm so scared. I'm out of remission so dr said they will use this. Any comments from someone who had this med

A MyMyelomaTeam Member said:

Thank you have anyone had this surgery ?

posted 11 months ago

First Diagnosed

First Diagnosed

Hi - I developed a pain on my left side (by the rib cage & on the side) about 2 weeks ago. I went to the walk-in dr last Wednesday. They tested my urine it has a little blood & my wb count was a little elevated. They said it might a kidney stone & told me to the er for ct scan. I don’t have a kidney stone but the found lyric lesions on lumbar & thoracic vertebrae. My blood work looks good & no other unusual findings were found on the ct scan. No weight loss. My question is how long did you… read more

A MyMyelomaTeam Member said:

I had no warning, I woke up for work one morning and could not bear weight because the pain in my right side was excruciating! I could not imagine what was wrong. I had worked the day before and was… read more

posted 10 months ago