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I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

People check your dates before replying! You may be replying to a five year old question! Granted an old answer may still be helpful to others, however note that it was an older question!

I Was On Carfilzomib + Dexa Chemo. It Responded For 16 Months. Now Not Responding. Is There Any Chance That This Chemo Medicine Work Again.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

They will probably want to switch you to another of the novel agents💕🥰

Maintenance- Doctor Has Me On Revlimid 15mg-21days, Is That A Normal Amount When Starting? 1st Day Cycle Dara And 20mg Dex. My 2nd Month.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thanks everyone- we will see how it goes. I’d rather have lowest dose possible. So far- still sitting at 0.02 for second month of maintenance. 🙏 it holds

Is Here Any Evidence That The Addition Of Dexamethasone To Revlimid In The MAINTENANCE Of MM Who HAVE NOT HAD A STEM CELL TRANPLANT Is Benef

A MyMyelomaTeam Member asked a question 💭

NOTE. I have not had transplant and this is maintenance, not initial therapy.
Please be specific, i.e. research directed at this individual situation. I can't find any.

A MyMyelomaTeam Member

I just saw a thread from a paper published 12 years ago citing Revlimid (Lenalidomide) and Dexamethasone as being used after remission as maintenance. Once the patient relapsed it changed to another… read more

How To In Your Hgb Due To High Dose Of Revlime

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

They switched me to Pomalyst pretty early on. I had two bouts of pneumonia. Counts took a hit. Plus I didn't respond that great to Revlimid. I'm still on Pomalyst 7 years later😉🌻🐣

Newly Diagnosed On Induction Treatment Of Revlimid, Velcade And Dexamethasone. Three Months Later To Find Out Treatment Is Not Working.

A MyMyelomaTeam Member asked a question 💭

My provider has no clue, the unsuccessful treatment information came out only when I want to another provider for second opinion.

A MyMyelomaTeam Member

I’m in Orlando, Florida. I’m getting the treatment almost locally but I did go last Thursday to see doctor Baz at moffitt center in Tampa, Florida for second opinion.
Thank you for your feedback

How Is It Determined When The Sct Will Be Done?

A MyMyelomaTeam Member asked a question 💭

This will be my husband second sct so they are already harvested and that should speed up the process Thank you for the answers

A MyMyelomaTeam Member

This May will be 3 years since my diagnosis. At last check I was in a very good partial remission. I’ve never had a SCT, although the stem cells have been harvested. Everyone is so different with… read more

Anyone Experienced Plasmacytomas Spread To Soft Tissue And Organs?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Of course Ann2
The regimen was considered the gold standard of care here in the US. 16 straight weeks of
Revlimid 25mg
Velcade
Darzalex FasPro
Dexamethasone

Then the ASCT and subsequent… read more

Why Should I Have An Autologous Stem Cell Transplant When Scientific Studies Show It Does Nothing For Your Survivability?

A MyMyelomaTeam Member asked a question 💭

Scientific studies show that their is no difference in the survivability rate between those multiple myeloma patients that have the autologous stem cell transplant and those that do not. So--why has it become the "standard of care"; and, why should I heed my doctor's recommendation to have same?

A MyMyelomaTeam Member

Although I appreciate your response, it is not based on scientific principals (personal experience versus a scientific study). If SCT is the "standard of care" or the recommended treatment, what is… read more

My Brother Had Agressive MM. He Went For 4 Chemo Session Then SCT And Then Another 4chemo Session. What His Chances Of Going In Remission?

A MyMyelomaTeam Member asked a question 💭

His latest PET CT showing activity.. there is minor increase from last. The doctor is suggesting to continue another 3 more chemo. Does anyone faced similar situation? Did anyone tried any other line of treatment?

A MyMyelomaTeam Member

@A MyMyelomaTeam Member I sense slight panic and bewilderment in your thoughts and writings. Please do not worry and relax. Since I am the honorary consigliere of the South Philadelphia Mafiosi I will… read more