Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice.
Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
My husband was diagnosed with Multiple Myeloma in 2016. He's undergone treatment first with Revlimid/Velcade/Dexamethasone then on maintenance dose of Revelimid, and now on Darzalex/Pomalyst/Dexamethasone. He tolerates the treatment welll, but has serious weakness in his legs. Without his arms helping to propel him up, he wouldn't be able to stand. His balance has progressively gotten worse. We've seen several neurologists, but still have no answers as to what's causing this weakness. We… read more
3 hours after Dara infusion with Dex I started getting hand and foot cramps (not new at all, but..) something has been cramped now for 16 continuous hours (right now, my right hand. Makes typing easy...)
Am I alone?
Has anyone found a good way to attack this?
Greetings from Alaska I have a very expensive post and I cannot continue with the process to get my tooth placed infection is a strong possibility I too had a SCT only 142 days ago. Transplant doctor… read more
Greetings from Alaska I walk just about every morning and I took two extra strength Tylenol before I head out because my back always hurts today I forgot to take them so I had to cut my walk short… read more
Keep trying to get the grey cells to work. Crossword puzzles, word find games, crafts, crocheting, knitting, etc
While I was on Revlimid my brain did the same thing
Knitting and playing Words with… read more
Hi - I developed a pain on my left side (by the rib cage & on the side) about 2 weeks ago. I went to the walk-in dr last Wednesday. They tested my urine it has a little blood & my wb count was a little elevated. They said it might a kidney stone & told me to the er for ct scan. I don’t have a kidney stone but the found lyric lesions on lumbar & thoracic vertebrae. My blood work looks good & no other unusual findings were found on the ct scan. No weight loss. My question is how long did you… read more
I had no warning, I woke up for work one morning and could not bear weight because the pain in my right side was excruciating! I could not imagine what was wrong. I had worked the day before and was… read more
MyMyelomaTeam is not a medical referral site and does not recommend or endorse any particular Provider or medical treatment.
No information on MyMyelomaTeam should be construed as medical and/or health advice.