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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "VP-16" in Q&A. To see all results and access other features, sign up for free.

So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

If you have become refractory to Revlimid, then the other IMIDS will probably not work. Depending upon your cytogenetics, you could use Venetoclax (t11,14) or go with a CAR-T. Make sure you are… read more

It’s Been 57 Days Since My SCT. My Platete Counts Dropped From 200 To 16 And I Received A Platelet Transfusion Yesterday? Anybody Know Cause

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I do the same.

I Was Just Informed That I Have A T14-16 Mutation And That Puts Me At High Risk. This Sounds Very Scary - Does Anyone Know More About It?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thank you, I am scheduled to see a specialist on July 15th.

I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

People check your dates before replying! You may be replying to a five year old question! Granted an old answer may still be helpful to others, however note that it was an older question!

I Was On Carfilzomib + Dexa Chemo. It Responded For 16 Months. Now Not Responding. Is There Any Chance That This Chemo Medicine Work Again.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

They will probably want to switch you to another of the novel agents💕🥰

My Brother Had Agressive MM. He Went For 4 Chemo Session Then SCT And Then Another 4chemo Session. What His Chances Of Going In Remission?

A MyMyelomaTeam Member asked a question 💭

His latest PET CT showing activity.. there is minor increase from last. The doctor is suggesting to continue another 3 more chemo. Does anyone faced similar situation? Did anyone tried any other line of treatment?

A MyMyelomaTeam Member

The chances of remission can vary based on individual factors, but here's some relevant information from the knowledge base:

- Stem Cell Transplant (SCT): People who undergo an autologous stem cell… read more

Dears, What Are The Best Ways To Prevent MM Be Back, After Chemotherapy Is Done?? Please 🙏

A MyMyelomaTeam Member asked a question 💭

My stepfather is gonna be done with chemo after 16 sessions
He has not done blood test, pathology & pet scan yet.
I'd like to know anything we need to do and ask his doctor
I'd appreciate your favor and kindness
Many thanks

A MyMyelomaTeam Member

Usually, myeloma patients are offered some type of maintenance to extent their progression free survival. I am on two maintenance drugs since I am high risk.

Maintenance- Doctor Has Me On Revlimid 15mg-21days, Is That A Normal Amount When Starting? 1st Day Cycle Dara And 20mg Dex. My 2nd Month.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thanks everyone- we will see how it goes. I’d rather have lowest dose possible. So far- still sitting at 0.02 for second month of maintenance. 🙏 it holds

I Would Like To Know Who Has Had Car-t Treatment And What Was The Outcome And Was It Worth It And The Side Effects?

A MyMyelomaTeam Member asked a question 💭
Multiple Myeloma Prognosis: Survival Rates, Light Chain, and More Factors Read Article...
A MyMyelomaTeam Member

My wife had CAR-T infused on June 16, 2023. It was our last choice. She passed on her birthday, July 13, 2023. If we had to do it all over we would have had Stem cell transplant at earlier stages… read more

Is Here Any Evidence That The Addition Of Dexamethasone To Revlimid In The MAINTENANCE Of MM Who HAVE NOT HAD A STEM CELL TRANPLANT Is Benef

A MyMyelomaTeam Member asked a question 💭

NOTE. I have not had transplant and this is maintenance, not initial therapy.
Please be specific, i.e. research directed at this individual situation. I can't find any.

A MyMyelomaTeam Member

I just saw a thread from a paper published 12 years ago citing Revlimid (Lenalidomide) and Dexamethasone as being used after remission as maintenance. Once the patient relapsed it changed to another… read more