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Diagnosed With Ultra High Risk MM From Smoldering High Risk. Not Much Info On This But It Is Increasing. Any Guide To Info Is Appreciated.
Steve:Keeping fingers crossed you are STABLE since being diagnosed that is my new favorite word. 😍 Let us know how it turns out Fingers Crossed for you Dee
Not Seeing Anything Re "ultra High Risk SMM" Or Even "high Risk SMM" Stages.
Stevon, do you have a nurse navigator to help you find a clinical trial? I know the Multiple Myeloma Research Foundation has them.
Ultra High-risk Smoldering Multiple Myeloma Diagnosis.
I just discovered I am ultra high risk smoldering MM due to having chromosome abnormalities 1q21, 1q22, and q32. It makes me less likely to benefit from treatment. Looking for best way to deal with it. ANyone have any experience?
I think they can as long as the trial guidelines are followed
I Have Ultra High Risk MM. I Am Currently MRD Negative. Preparing For A Stem Cell Transplant In March. Any Recommendations?
Hey Lorraine, it looks like you are following the best recommendations. Getting to MRD negativity before transplant is so awesome. I'm high risk with P53/17p deletion. I was told a transplant was a… read more
For Those Of You Who Take Turmeric Curcumin, What Is Your Dosage?
I take it daily. It fights inflammation, and gives energy.
CBD
I would like to try CBD for pain control as well as help with nausea. It seems like there is a lot of information out there and I really don't know where to begin. Can anyone advice me on what works for them? Thanks
Medical Marijuana for Myeloma
Overview
Medical marijuana, also known as medical cannabis, is widely used to treat chronic pain, nausea, vomiting, loss of appetite, and insomnia, all common symptoms… read more
Autoimmune Disorder Along With Multiple Myeloma? I Have Lupus And Find It Difficult To Know Which Illness Is Causing Particular Symptoms.
Does anyone have an underlying autoimmune disorder along with Multiple Myeloma? I have Lupus and find it difficult to know which illness is causing particular symptoms.
It's understandable that managing both lupus and multiple myeloma can be challenging. Here are some key points from the knowledge base that might help:
- Autoimmune Disorders and Myeloma: Autoimmune… read more
Hi All, I Am On Remission From The MM As You All Know, But I Have A Lump About 2 Centimeters Inline With My Spine. Have U Heard Of This?
I went to get an ultra sound of it today.
Wishing you the best!🥰
Who Among Us IgG Kappa, Ultra High Risk With 1q Gain (3copies) Del 17p, Del 1p And T(4;14) Has Survived For How Long Post CAR-T Cell?
That’s my diagnose since last May and after 4 treatment, last is SPd, no therapy for a month because radiation and complicated diverticulitis with abscess.
Hi Donna, my Myeloma labs were off the charts for one month, we are working on getting better. Thank you 🙏🏻🤗
This Question Turned Into A Discussion About MRD-SURE And Curcumin - Will Repost The Original
Hello Larry
Other then using Turmeric it is better to take Curcumin, that helps inhibit inflammation to support joint comfort, encourages a healthy immune response, promotes cardiovascular health and… read more
