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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Treanda"

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Has Anyone Done A Stem Cell Transplant And Then NOT Taken Any Maintenance Drugs?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Hi, well I suppose that's technically feasible, but the standard of care is to start maintenance therapy >100 days post-ASCT. I've been reading about the lengths of maintenance treatment in… read more

IgG And Kappa Light Chain Rising M Spike Stable
A MyMyelomaTeam Member asked a question 💭

Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?

I’m confused and perplexed.

A MyMyelomaTeam Member

How long have you been doing treatments? Sometimes it takes a while for things to level off

How Do You Know When You Are In Remission?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Sounds good Brenda💕

Has Your Bone Pain Improved After SCT? My Brother Had Radiation For Lytic Lesions In Spine - In December. He Has Had Recent MRI Contrast
A MyMyelomaTeam Member asked a question 💭

Says he may have aggravated it on tread mill. MRI showed only tendinitis. He says it feels like shin spints. He can only walk about 10 minutes before he starts to feel pain. Only resting helps it. He just wants to get more mobility back. He is 58 was very active and is in the process of SCT planning for June. Doctor says no lesions present now and his bones are healing due to the Zometa infusions monthly since January.

A MyMyelomaTeam Member

I had my first zones yesterday. In lots of pain from low back and hip replacement issues. Trying gabapentin but it makes me sleepy

Tracking Blood Work
A MyMyelomaTeam Member asked a question 💭

Has anyone found a good form either online or printable to track myleoma blood work

A MyMyelomaTeam Member

The chemo nurses used too and then quit doing it for some reason but yeah why would I need too sign a release form too get a copy of my own blood work results.

REMISSION ???
A MyMyelomaTeam Member asked a question 💭

If I’m in Remission why are my KAPPA/LAMBDA LIGHT CHAINS and My KAPPA LIGHT FREE SERUM numbers are fluctuating one week they’re going down the next week they’re up my KAPPA/LAMBDA LIGHT CHAIN was only a number or two down from being in rangewhat’s that’s about my next question is why my WBC NEUTROPHILS are on the low side again my RDW are high been on the high side for awhile my ALUBIM LOW ??? 🤔if I’m spelling it correctly like I don’t understand what’s going on is this normal if I’m in… read more

A MyMyelomaTeam Member

Thanks everyone for you feedback it’s greatly appreciated reading all your responses have really , truly eased my mind still quite anxious for what my ONCOLOGIST gonna say tomorrow 🙏🏽🤞🏽

Thanks… read more

Doctor Stopping Me From Taking Revlimid
A MyMyelomaTeam Member asked a question 💭

Hi all, I have been taking Revlimid for Two years. My blood work is fantastic. I am in stage one of Multiple Myeloma. My doctor told me to stop taking Revlimid for about three months. Go for a pet scan and then see him in August. I am afraid that taking no medication will make my multiple myeloma worse. Any thoughts?? Thanks!

A MyMyelomaTeam Member

Good for you
The exercise is so important and yet the energy to do so is much more challenging!

Leg Weakness
A MyMyelomaTeam Member asked a question 💭

My husband was diagnosed with Multiple Myeloma in 2016. He's undergone treatment first with Revlimid/Velcade/Dexamethasone then on maintenance dose of Revelimid, and now on Darzalex/Pomalyst/Dexamethasone. He tolerates the treatment welll, but has serious weakness in his legs. Without his arms helping to propel him up, he wouldn't be able to stand. His balance has progressively gotten worse. We've seen several neurologists, but still have no answers as to what's causing this weakness. We… read more

A MyMyelomaTeam Member

All of the Fruits and veggies work well! I have the leg weakness also. It was discovered that I had 2 small tumors on middle spine and lower spine . Remove with radiation! still have some minor pain… read more

I’m Going To Have A Bone Marrow Biopsy Done Wednesday. Do I Need Someone To Go With Me To Drive Me Back Home.
A MyMyelomaTeam Member asked a question 💭

Will I be in pain so I can’t drive? Also, my Mspike is down to 1.4 and but my kappa/lambda ratio is almost 14. Does anyone else have this going on? What does it mean?

A MyMyelomaTeam Member

If you get sedation you need a driver

Lamda Light Chain Numbers Increased
A MyMyelomaTeam Member asked a question 💭

My igg started at 6433 and as of this week it’s 4190 but my lamda light chain, free, serum started at 74.3 and now it’s up to 115.9 has anyone have this happen to them? I guess I’m trying to figure out what would make the numbers increase???

A MyMyelomaTeam Member

My kappa light chains are increasing and my team said If they get to 100 we will look at it. I’m thinking she will change the treatment plan. I will keep you posted.