Does anyone have been on CTD treatment
Thank you for answers,when my dad finished treatments I can ask a dr to change thalidomid
Brain Fog...
It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....
Have you experienced this? If so what did your Dr do? I was on 100 mg of Thalomid for almost a year and did great until it didn’t. Heart rate dropped to 42, thus the switch to Revlimid. Between the diarrhea and the awful full body pain and stiffness I just feel awful. I will be discussing with my DR. I had hoped it would get better but to no avail. I also do Darzalex monthly. IVIG monthly and Zometa monthly. Could the stiffness and soreness be from IVIG? Would love your feedback. I’m ready to… read more