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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Talvey" in Q&A. To see all results and access other features, sign up for free.

What Is Talvey

A MyMyelomaTeam Member asked a question 💭
What Is BCMA-Targeted Immunotherapy for Multiple Myeloma? Read Article...
A MyMyelomaTeam Member

Talvey, also known by its drug name talquetamab, is a prescription drug approved by the U.S. Food and Drug Administration (FDA) to treat relapsed or refractory multiple myeloma in adults who have… read more

Anyone Had TALVY?

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Talvey (talquetamab) is used to treat relapsed or refractory multiple myeloma in adults who have already tried at least four lines of therapy. These previous therapies must include a proteasome… read more

Side Effects Of Talvey

A MyMyelomaTeam Member asked a question 💭

I’m starting treatment Monday and will have to be in hospital about a week for monitoring. Does anyone have experience with this?

What Is BCMA-Targeted Immunotherapy for Multiple Myeloma? Read Article...
A MyMyelomaTeam Member

Numbers are good however I am dealing with some side effects.

Breathing Issues Caused By Treatment.

A MyMyelomaTeam Member asked a question 💭

Relapsed. Doing a Jannsen study which combines 3 drugs; Talley, Dara and Pom. Partial response so far. In month 5 of the study. Have fatigue and trouble breathing even though oxygen level is normal. Very frustrated.

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A MyMyelomaTeam Member

Are you experiencing breathing problems while undergoing treatment for multiple myeloma? If so, it's important to discuss this with your doctor. Sometimes, medications used in the treatment of myeloma… read more

Does Anyone Have Experience With Loss Of Taste Resulting From Treatment?

A MyMyelomaTeam Member asked a question 💭

I'm experiencing 90% loss of taste from daratumumab (Darzalex) and talquetamab (Talvey). This is not an unusual after effect of both infusions, but I'm wondering if the taste fully returns after a defined period of time or are there remedial steps I can take (e.g., acupuncture) that help help make eating more enjoyable?

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A MyMyelomaTeam Member

I have constant metallic taste in my mouth. I have been eating more spicy foods BUT I have a stomach problem now and it feels like I am developing an ulcer. Just had an endoscopy and I have an… read more

I Had The SCT In Dec/Jan And Both Hips Were In Pain Afterwards The Pain Is Centralized To Right Hip, Both Hamstrings,calves, And Ankles.

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

I'm sorry to hear about your pain. I didn't have any new pain after my SCT. I'm going to a new pain doctor. Mine retired.

To Stem Cell, Or Not To Stem Cell? My Oncologist Says He Feels Con's Outweigh The Pros. 2nd Opinion UCLA Doc. Says It Is The Way To Go. ???

A MyMyelomaTeam Member asked a question 💭

In 7th week of MM treatment. Numbers are falling fast. Side effects are sucking my soul.. Looking for data on stem cell success and problems. Any insight out there? Thanks. Rich from simi valley.

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A MyMyelomaTeam Member

Deciding whether to undergo a stem cell transplant for multiple myeloma can be challenging. Here are some key points from your knowledge base to consider:

Pros of Stem Cell Transplants
- Potential… read more

Pain And Lack Of Sleep...

A MyMyelomaTeam Member asked a question 💭

I have not talked with my primary care provider or my oncologist about the use of CBD products, but I am willing to try it out...I have been taking (dex ) for 9 months and have even started taking less doses,,,but I still struggled with getting proper rest 3 times a month,,,if the addition of CBD will help I'll surely try it !

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A MyMyelomaTeam Member

Wow, that's not good. There
can be serious side-affects of mixing anything, let alone medicines, 😔 let alone pain medicines - add to that alcohol - etc. Aspirin, NSAIDS don't mix - allergies -… read more

Anyone Had Bispecifics?

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

So happy you are in remission Colleen! Monday I start the Talquetamab and hoping hospital stay will be 5 days. I live 3 1/2 hours from Moffitt so none of this is convenient is why I’m praying once I… read more

Seeking CareGiver Counseling In Hudson Valley NY (in Or Close To Poughkeepsie)

A MyMyelomaTeam Member asked a question 💭

I am a CareGiver for family member with Multiple Myeloma. I could use counseling help from professional familiar with this issue. For face-to-face, must be in the Hudson Valley (in or close to Poughkeepsie). Someone associated with BCBS. Open to remote counseling. Thank you!

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A MyMyelomaTeam Member

Healthtree has myeloma coaches for caregivers.