What Is Talvey
Anyone Had TALVY?
Side Effects Of Talvey
I’m starting treatment Monday and will have to be in hospital about a week for monitoring. Does anyone have experience with this?
Numbers are good however I am dealing with some side effects.
Breathing Issues Caused By Treatment.
Relapsed. Doing a Jannsen study which combines 3 drugs; Talley, Dara and Pom. Partial response so far. In month 5 of the study. Have fatigue and trouble breathing even though oxygen level is normal. Very frustrated.
Are you experiencing breathing problems while undergoing treatment for multiple myeloma? If so, it's important to discuss this with your doctor. Sometimes, medications used in the treatment of myeloma… read more
Does Anyone Have Experience With Loss Of Taste Resulting From Treatment?
I'm experiencing 90% loss of taste from daratumumab (Darzalex) and talquetamab (Talvey). This is not an unusual after effect of both infusions, but I'm wondering if the taste fully returns after a defined period of time or are there remedial steps I can take (e.g., acupuncture) that help help make eating more enjoyable?
I have constant metallic taste in my mouth. I have been eating more spicy foods BUT I have a stomach problem now and it feels like I am developing an ulcer. Just had an endoscopy and I have an… read more
I Had The SCT In Dec/Jan And Both Hips Were In Pain Afterwards The Pain Is Centralized To Right Hip, Both Hamstrings,calves, And Ankles.
I'm sorry to hear about your pain. I didn't have any new pain after my SCT. I'm going to a new pain doctor. Mine retired.
To Stem Cell, Or Not To Stem Cell? My Oncologist Says He Feels Con's Outweigh The Pros. 2nd Opinion UCLA Doc. Says It Is The Way To Go. ???
In 7th week of MM treatment. Numbers are falling fast. Side effects are sucking my soul.. Looking for data on stem cell success and problems. Any insight out there? Thanks. Rich from simi valley.
Deciding whether to undergo a stem cell transplant for multiple myeloma can be challenging. Here are some key points from your knowledge base to consider:
Pros of Stem Cell Transplants
- Potential… read more
Pain And Lack Of Sleep...
I have not talked with my primary care provider or my oncologist about the use of CBD products, but I am willing to try it out...I have been taking (dex ) for 9 months and have even started taking less doses,,,but I still struggled with getting proper rest 3 times a month,,,if the addition of CBD will help I'll surely try it !
Wow, that's not good. There
can be serious side-affects of mixing anything, let alone medicines, 😔 let alone pain medicines - add to that alcohol - etc. Aspirin, NSAIDS don't mix - allergies -… read more
Anyone Had Bispecifics?
So happy you are in remission Colleen! Monday I start the Talquetamab and hoping hospital stay will be 5 days. I live 3 1/2 hours from Moffitt so none of this is convenient is why I’m praying once I… read more
Seeking CareGiver Counseling In Hudson Valley NY (in Or Close To Poughkeepsie)
I am a CareGiver for family member with Multiple Myeloma. I could use counseling help from professional familiar with this issue. For face-to-face, must be in the Hudson Valley (in or close to Poughkeepsie). Someone associated with BCBS. Open to remote counseling. Thank you!
Healthtree has myeloma coaches for caregivers.