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Top 10 Search Results for "Sarclisa"

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What Is A "good" Or Manageable M Spike?
A MyMyelomaTeam Member asked a question 💭

Is there such a thing as a good or manageable M Spike? Or is it different for each type of Myeloma? My M Spike was down as low as .15 back a few years ago. It now has been hovering around .40 since I changed therapies. I started with Revlimid, Velcade, Dex on 2018. Now on Darzalex Fastpro, Kyprolis, Dex. I know I want it lower but my doctor says it may never go lower. Maybe just hanging out at .4 is ok.

What is other's experience?

Steve

A MyMyelomaTeam Member

Steveh, I hope you do well with Pomalyst and Sarclisa. Keep us posted. I do get fatigue with Pomalyst. Also constipation.😏

My Husband Has Started A New Treatment Of Sarclisa, Pom, And Dex. He Is Having Difficulty Tolerating This Trio. He Was Diagnosed In 2009.
A MyMyelomaTeam Member asked a question 💭

I would like to hear from others who are on this treatment. Just finishing first cycle. Thank you

A MyMyelomaTeam Member

I begin this treatment plan April. I needed a port and a blood clot was discovered. I am taking eliquis twice a day. I have leg spasms and when that happens, I take a tablespoon of mustard and drink… read more

Anyone On Elotuzumab And Pomalyst Combination? I Was Just Taken Off Daratumamab And Revlimid. Which Is Newer?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I think elotuzamam is also known as Sarclisa. I was on Pomalyst, dex and Sarclisa with very good results until they all quit working. Now I am on day 25 of CAR-T.

Treatment W Sarclisa Dex And Carfilzomib
A MyMyelomaTeam Member asked a question 💭

Has anyone been treated with the above combo doctor is putting me on this starting tomorrow. It was either that or the Car T treatment. I’m so not ready for.

Thanks Everyone!

Susan

A MyMyelomaTeam Member

You are amazing. They keep changing treatment on you and you continue to March on. I hope this one sticks for a while.

How Long Have You Been Living In Remission
A MyMyelomaTeam Member asked a question 💭

Ive been in remission for 3years. Is anyone on here that has been in remission? For how long? Im only 43 & looking forward to many many years in remission

A MyMyelomaTeam Member

Shipmates, I had my SCT July 14, 2022 and have been in remission. Still take my Darzalex Fastpro and IVIG. Every 3 month Zometa..

Hoping Someone Can Help Give Us Some Insight On This Horrible Disease.
A MyMyelomaTeam Member asked a question 💭

My husband was diagnosed Iga lambda light chain in Feb. 2019. He has been on 5 other lines of treatment and is currently on Kyprolis, Sarclisa and dex. They did a pet scan in December and it shows lots of soft tissue tumors in his liver, spleen and throughout the skeleton. Two weeks ago his eye started to pertrude out and they thought it could be conjunctivitis, but continued to get worse. Went to eye Dr who then sent us to a university hospital to have it looked at closer. After CT it showed… read more

A MyMyelomaTeam Member

I agree with JeGist! It is time to bring in the big guns! I was at the end of the line for what Maui had to offer me, so I went to Fred Hutch in Seattle, and they started me on a drug I could not get… read more

Is Anyone Currently On Sarclisa Through IV? I Am, Since Being In Remission. Every Other Week For Maintenance As I Am In Remission. Thx
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I am not on Scarclisa but in remission and doing immune therapy every 2 weeks. It has been 4 years since being diagnosed..I am thankful to God for my life .I hope you continue to do well!

Has Anyone Developed Orthostatic Hypotension? Does It Progress? How Has This Effected Life Style?
A MyMyelomaTeam Member asked a question 💭

My husband diagnosed in 2009, currently on sarclisa,Pom,Dex. Recently developed orthostatic hypotension, lasts for a short periods, How has it changed lifestyle? He’s semi retired and we downsized to a condo, we have always had dogs. He wants to get another one, can’t decide if it’s a good idea or not? Anyone with experienced with this side effect and how it changed your lifestyle?

A MyMyelomaTeam Member

Yes I have what I call the wobble effect just sorta unsteady

Why Does Sarclisa Isatuximab Cause Chest Pain?
A MyMyelomaTeam Member asked a question 💭

Extreme pain in chest after IV treatment.

A MyMyelomaTeam Member

Do you get treat through a port in your chest? Do you also get dexamethasone through your port? If so, tell your oncologist about this and ask about a referral to a cardiologist. Chest pain is not… read more

Remission After Stem Cell Transplant
A MyMyelomaTeam Member asked a question 💭

how long u stay in remission after stem cell transplant

A MyMyelomaTeam Member

Wow Sally you sure have been through the gauntlet of heath issues. I’m glad that you are doing better. I know exactly how rough the heavy duty chemo makes you feel and it took me almost a year to… read more