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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Radiation therapy"

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Lytic Lesions & Radiation

Lytic Lesions & Radiation

Has anyone had a lesion return after being radiated? It's been 2.5 yrs since the radiation, 1 yr since ASCT. The lesion is on the occipital condyle (worst bone to break). They could not radiate it entirely the 1st time, as it is too close to the brain stem. It is back, supposedly the same one. The neurologist made an appt. with the Rad. Oncologist. He sees the reg. Oncologist next week. His labs have all been good.😟 I'm assuming since they could not get all of it the 1st time, it will keep… read more

A MyMyelomaTeam Member said:

He had his Oncology appt. Dr. said "what"? Called head of Radiology. Lesion is NOT back, it is healing. Radiologist either did not read correctly, or the report was typed wrong, not quite sure. Dr… read more

posted 5 days ago

Car-T Cell Therapy

Car-T Cell Therapy

With 6 new Car-T Cell Therapy's now approved by the FDA since 2017, how do we know which one works best?

A MyMyelomaTeam Member said:

Hey Ricky, there are only 2 FDA approved CAR T available now for myeloma. More in the pipeline. They are only doing CAR T for relapsed and refractory myeloma after several treatments have failed. The… read more

posted 3 months ago

I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight.

I’ve Lost 30 Pounds Since My Diagnosis Of MM. I Have Questions About Weight.

Going to have my stem cell transplant in 3/12 weeks. I will be hospitalized for 2 to 3 weeks I’m told. I’ve lost 30 plus pounds.
Will I be losing more weight? Will I gain weight months after my transplant? Should I get rid of my old me clothes? I don’t want to keep buying clothes. Please help. Thanks in advance for answering my questions. I truly appreciate it.
Ps I was on Revlimid , Velcade, Darzalex Fastpro and Dexamethasone.

A MyMyelomaTeam Member said:

I lost about 6 pounds, and promptly gained it all back! Good luck and I hope it goes well for you

posted about 2 months ago

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

When do you generally begin maintenence therapy after a SCT?

A MyMyelomaTeam Member said:

What kind of numbers are we talking about for after your stem cell transplant?

posted 11 months ago

I Would Like To Know If Stem Cells Transplant Is Worth What You Have To Go Through. Are Other Treatments Just As Effective.

I Would Like To Know If Stem Cells Transplant Is Worth What You Have To Go Through. Are Other Treatments Just As Effective.

A MyMyelomaTeam Member said:

For my husband it was worth it. Without it he would have continued to have lesions that would need to be radiated. Before he could even do stem cell he had to have radiation on his seventh rib (it was… read more

posted 5 months ago

What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

I was writing down what Marcia Holman is taking beginning with Centrum Silver Multivitamin, 1000 mg vitamin c, but d, magnesium for leg cramps, Alpha Lipoic Acid 600 mg for peripheral neuropathy, L -Lisine for immune health, but then I somehow lost the rest when writing it down. Could anyone help with what she wrote. I’m also very interested to know what the other team members take & is working specifically for peripheral neuropathy in my toes & for immune health. I apologize for not posting… read more

A MyMyelomaTeam Member said:

MMaffects your kidneys and as such be sure to ask your Dr because I was only allowed certain ones as my kidneys were gone when diagnosed.
God's blessings on all of you!

posted about 1 month ago

RVD Treatment - Specific Side Effect?

RVD Treatment - Specific Side Effect?

I’ve just started my first round of RVD treatment. 3 days after my second shot of Velcade, I experienced intense mid-section pain, that ran front and back around my lower torso. More muscular feeling in nature (not my stomach being sick), but also with pain in my lower ribs as well. My bones were heavily impacted at diagnosis, just as an additional detail to consider.

The pain is now more localized to the front abdomen, however I’m still having trouble with mobility in that same area, making… read more

A MyMyelomaTeam Member said:

Pain management wouldn't help,but my onoglist gave me good pain meds

posted over 1 year ago

IgG And Kappa Light Chain Rising M Spike Stable

IgG And Kappa Light Chain Rising M Spike Stable

Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?

I’m confused and perplexed.

A MyMyelomaTeam Member said:

That, I don't know but I can be sure that if you have. light chain myeloma they are goig to watch the light chains more closely.

posted 17 days ago