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I had 10 straight days of radiation to two areas of my spine, right hip and pelvis. It did cause some mild pain and tiredness, but really didn't have much side effects.
Depending on what you want, stem cell harvesting after one dose of chemo, then re-administering your own cells can work for a long time. My high school friend had 80% of her bone marrow affected by… read more
sct was may 2023 , I was in remission till January 2024 m spike rise to 0.1 but all test good , after my gum start to swallow and I Started have bump on the roof of my mouse ,oral biopsy confirm plasmacytoma. today I met with my mm specialist he give me choices :bispecific or car t transplant or he gonna add cytoxan and pomalyst to darzalex faspro and dexamethasone, he told me to stop revlimid 10 mg. he referred me to oncology radiation. I am so confused now my appointment with radiology this… read more
Samar it sounds like you are seeing a myeloma Specialist? I hope we aren't getting you more nervous and confused. Seattle has some excellent doctors.
Dry, ashy, and peeling skin can be a common issue for individuals undergoing treatment for multiple myeloma, particularly those receiving radiation therapy or chemotherapy. Here are some tips to… read more
Wow.....how are you doing now JeGist? I haven't had any radiation treatments so I can't answer your question.
Thank you Paula. I appreciate your help.😊
I'm in remission after SCT and expecting to start maintenance with Revlimid in the next couple of weeks. But - I missed the part of my PET scan review months ago where I had a T12 compression fracture (I heard about the broken ribs.). I still have pain and I walk with Nordic Walking sticks if I'm doing more walking than just basic around the house. I sense that my back isn't strong enough to hold me up. What recommendations have your doctors given you for similar symptoms? Is there a… read more
Hi Sara, I'm not sure, but a radiation oncologist could probably help you. Physical therapy is probably going to want specific orders. 💕
That’s my diagnose since last May and after 4 treatment, last is SPd, no therapy for a month because radiation and complicated diverticulitis with abscess.
Hi Donna, my Myeloma labs were off the charts for one month, we are working on getting better. Thank you 🙏🏻🤗
I am starting treatment next week with VRd. I have bone lesions and bone pain, will the treatment help the pain? Does the VRd have bad side effects?
I’m going to try this