Radiation therapy and myeloma | MyMyelomaTeam

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Top 10 Search Results for "Radiation therapy"

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Why Are Patients Giving Chemotherapy And Radiation Treatment When We Already Know That It Doesn’t Work. Is Better Having A Quality Of Life .
A MyMyelomaTeam Member asked a question 💭
Palliative Care for Myeloma: 8 Fast Facts Read Article...
A MyMyelomaTeam Member

Depending on what you want, stem cell harvesting after one dose of chemo, then re-administering your own cells can work for a long time. My high school friend had 80% of her bone marrow affected by… read more

Hard To Make Decision Wish Treatment
A MyMyelomaTeam Member asked a question 💭

sct was may 2023 , I was in remission till January 2024 m spike rise to 0.1 but all test good , after my gum start to swallow and I Started have bump on the roof of my mouse ,oral biopsy confirm plasmacytoma. today I met with my mm specialist he give me choices :bispecific or car t transplant or he gonna add cytoxan and pomalyst to darzalex faspro and dexamethasone, he told me to stop revlimid 10 mg. he referred me to oncology radiation. I am so confused now my appointment with radiology this… read more

A MyMyelomaTeam Member

Samar it sounds like you are seeing a myeloma Specialist? I hope we aren't getting you more nervous and confused. Seattle has some excellent doctors.

Hello MM Family I Would Like To Know Why Do Some Patients Have To Get Radiation With Multiple Myeloma And Some Don’t?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Wow.....how are you doing now JeGist? I haven't had any radiation treatments so I can't answer your question.

What Have Your Doctors Recommended To Recover Strength After A Spinal Compression Fracture Due To MM.
A MyMyelomaTeam Member asked a question 💭

I'm in remission after SCT and expecting to start maintenance with Revlimid in the next couple of weeks. But - I missed the part of my PET scan review months ago where I had a T12 compression fracture (I heard about the broken ribs.). I still have pain and I walk with Nordic Walking sticks if I'm doing more walking than just basic around the house. I sense that my back isn't strong enough to hold me up. What recommendations have your doctors given you for similar symptoms? Is there a… read more

A MyMyelomaTeam Member

Hi Sara, I'm not sure, but a radiation oncologist could probably help you. Physical therapy is probably going to want specific orders. 💕

Who Among Us IgG Kappa, Ultra High Risk With 1q Gain (3copies) Del 17p, Del 1p And T(4;14) Has Survived For How Long Post CAR-T Cell?
A MyMyelomaTeam Member asked a question 💭

That’s my diagnose since last May and after 4 treatment, last is SPd, no therapy for a month because radiation and complicated diverticulitis with abscess.

A MyMyelomaTeam Member

Hi Donna, my Myeloma labs were off the charts for one month, we are working on getting better. Thank you 🙏🏻🤗

New Myeloma Patient
A MyMyelomaTeam Member asked a question 💭

I am starting treatment next week with VRd. I have bone lesions and bone pain, will the treatment help the pain? Does the VRd have bad side effects?

A MyMyelomaTeam Member

I’m going to try this

Who Has Stopped Maintenance Meds Like Revlimid 2 Years After SCT And How Are You Doing
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I have heard that maintenance chemo is important to hopefully extend remission. I am on the same chemo (darcelex and kyprolis) for maintenence as I took to get me into remission. My doctor shared and… read more

Does Anyone Have Their Own Personal Theory As To Why They Got Myeloma?
A MyMyelomaTeam Member asked a question 💭

I know no one knows the exact cause, and it’s probably from a combination of factors, but I can’t help but wonder!

A MyMyelomaTeam Member

I was just asked at our Cancer clinic if i was exposed to second hand smoke... that I was in abundance as a kid. Makes you wonder if that also could have played a part in the damaged DNA?

Larry2 If You Are Out There Your Thoughts On Zomata And Other Fellow Teammates Thoughts Also Please?
A MyMyelomaTeam Member asked a question 💭

No hurry with replies just asking. Enjoy your weekend everyone in your corners of the world.🌎☮️😊

A MyMyelomaTeam Member

Larry,
I totally agree. Medicine is still in the trial and error stage. The body is so complex. Only God could make something so complex even smart doctors can’t figure it out.
Paula 🌹

Has Anyone Experienced Persistently Low Platelet Counts Post SCT Even Though They Were Normal Before (low For Two Years Now)?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I have not been on Revlimid since late 2019, but I’ve had low platelets since then. Even though the count is low, they are very consistent. I’ve been on Darzalex and IVIg since 2020.