I have had Kappa Light Chain MM going on 4 years. I was very sick and had high light chains when diagnosed. I took 5 months of VRD, that changed into CyBorD when I had horrific hives from Revlimid. I had ASCT in 2021 then was maintained on Velcade every other week until this last year when light chains gradually climbed from 2-3 to over my 10mg/dl "limit". I am now around 14. I currently have no symptoms, I feel well, actually better since I quit the Velcade a month ago.

While researching what… read more

Hello so I would to hear from any one that had the harvest but waited like a year to have the SCT. I'm wondering how you felt
My thoughts are I felt so tired after I had the harvest I couldn't even imagine how I would have been able to go thought this. And I have heard many say they were sick, tired and it took alot out of them. I'm wondering if someone waited like a year was there body better able to handle it and maybe not have so many side effects
Would love to hear from anyone that did… read more