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my CSF protein total is high after a lumbar function procedure ,is anybody has that before,thanks
Greetings from Alaska Samar I’m just checking on you. how are you doing? Have you met with the doctors and you guys have come up with a plan of action please share how you’re doing and your course of… read more
I just wanna share with you that's carfilzomib after 2years cause me hemolysis and I was life threatening for 8 days at hospital, they open my neck put tube and do for me plasma exchange for 6 days on a row . is anyone experience hemolysis before? thanks
Yes so sorry they put you through that I’ll say prayers for your quick recovery!!!
Edith,
It’s nice your MM is stable. Mine is high risk, so it’s adding and deleting, which is not so good. I’m doing well by the grace of God.
Paula 🌹
Plasma cell leukemia
Deb,
I Hope someone can answer your question and give you advice 💕
Paula 🌹
Yes, multiple myeloma (MM) and AL amyloidosis can sometimes occur at the same time in the same person. Both conditions arise from plasma cells, and while they are distinct diseases, they share some… read more
It’s not Multiple Melanoma, it is Multiple Myeloma
Melanoma occurs when the pigment-producing cells that give color to the skin become cancerous
Multiple Myeloma is a cancer of plasma cells.
The… read more
For sure, Donna A. is the best❤️
Yes, multiple myeloma (MM) and AL amyloidosis are related conditions, both involving plasma cells. In AL amyloidosis, abnormal plasma cells produce misshapen light chain proteins that form amyloid… read more
As a retired physician, I hypothesize that a cause for multiple myeloma is long term exposure to your immune system by a never changing bacteria or virus. The most likely source for such a bacteria or virus is a root canal or shingles. Bacteria can multiply and divide without exposure to plasma cells in the tubules of a dead tooth. Shingles virus hides in the spine. The never changing bacteria from the dead tooth then leaks into the gum where plasma cells are constantly stimulated to create a… read more
I had singles probably 20 years ago and have had several root canals over the past 20 years
I actually went to the ER for abdominal pain when I was first diagnosed. I could barely move without being in tremendous pain. The doctor told me my spleen was enlarged and if i coughed or sneezed too hard that it would rupture and I would be dead in minutes because they had no surgical team there. Also my hemoglobin was at a 4. Doctor also told me if I hadn't came in I would've probably went to sleep that night and just never woke up. After 13 hours of trying my best to sit still finally my… read more
Pretty scary, so glad you are doing well now