I've completed initial treatment and SCT and I'm now in remission. I am on 10 mg Revlimid for Maintenance. But that takes care of the MM. What about the bone pain, fatigue, etc. that remain? How have you dealt with that? What have your Drs advised, prescribed or recommended? I have pain in my back and one knee and fatigue. A bone density test has revealed Osteoporosis (no real surprise there considering). I've been told that will be treated and see the doctor next week. I've also been… read more
Has anyone experienced severe groin pain. Without going into to much detail, my husband has severe pain radiating from his back all the way to his groin. No one can tell us what’s causing it. He’s on all this darn pain medication that’s not doing him any good. He take 200 mg of slow release Tramadol, 15mg morphine, Flexerill at bed time to be able to sleep at all. I’m tired of seeing him in all this pain. His myeloma is in check. So if it’s not tge myeloma they just keep sending him from one… read more
I've had some groin pain recently (last few months anyway). It started as what I thought was jock itch and a dermatological issue. It progressed to more of an internal issue and was determined to be a… read more
I was diagnosed with MM in 2022 and I did not have a Stem Cell Transplant but my numbers are coming down. At times I have a lot of back pain but I do take perscription pain meds 2x daily for my back since I had 4 compression fractures which has healed. I working on walking 2 miles a day. I do cook and do other things but if my back starts hurting I have to sit down and rest my back. What I want to know has anybody had the Kyphoplasty surgery in their back and what was the side effects and… read more
I buy mine at Sprouts Market. I’m sure you could order it online if you wanted. I have never heard of Calcium, magnesium, D3 or K2 affecting chemo. The K2 tells the calcium to go to the bones. Super… read more
I have very bad neuropathy due to Induction. Treatment like dexamethasone did really bad things to my muscles. During the day and as I awake in the morning, the underside and even the inside edge of my feet will have very bad cramps. I'll flex my feet to relieve it some. I've just started taking magnesium oxide (250mg daily). I'm also stretching them at the gym but it still has a long way to go.
Any recommendations ?
Thanks
Theraworks really helps
Ahoy shipmates, I had 9 compression fractures repaired with kyphoplasty. I still have back pain. The doctor told me I have arthritis.
Any shipmates experiencing the same problem? Any suggestions? I would appreciate any advice. Thank you so much. Enjoy your evening.
Same here with 10 compression fractures and kyphoplasties. Also 4 broken ribs. The pain is always there, but more extreme on some days. I seriously have found walking and planks to strengthen my core… read more
What actions or treatments are working to help alleviate Lower Back Pain and discomfort?
i have lower back pain because of an L1 injury from an accident, back in 2011. If I stand or bend to much, it acts up, but it's not something that is horrible. I noticed when I really don't feel well… read more
For instance, I've had severe CPIN for over a decade due to Velcade and the only pain med that helps reduce the pain is Percocet. Any folks here in similar situation? Are you using opioids for pain relief? If so, what is your daily dosage?
It did on mine after about 2 months of back pain, I took Tylenol every 6 hours as was told by my oncoligest
They’ve been recommended to help with my neuropathy.
I’m interested to hear how well they worked and if any complications
Thanks
BTW - As a follow up to my Post above. I did get my MRD Report a that Friday. Of course I am MRD Negative (10 -6) as I expected.
The great additional News is - I was actually MRD Negative on Oct… read more
Why do MM patients suffer from so much pain while going through treatment? Does this mean that the treatment isn't effective?
My pain came from pathological fractures and tumors in the bones very uncomfortable to say the least. Radiation helped immensely with that I did end up having to have surgery for a collapsed cervical… read more